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    Archived pages: 9 . Archive date: 2013-05.

  • Title: XXYY Syndrome and the XXYY Project
    Descriptive info: .. The XXYY Project.. Purposeful, productive lives for males with XXYY.. English.. Deutsch.. Français.. http://xxyysyndrome.. org/english.. php.. Welcome to the XXYY Project.. Image:.. Welcome to the home of information about XXYY Syndrome and the XXYY Project.. Here, you will find resources for support, education and medical research and information on this rare genetic disorder.. Learn about the symptoms and characteristics of XXYY and how to become involved with our support group and with the XXYY Project, a nonprofit organization.. All of the pictures of boys and men with XXYY Syndrome on this site have been used with permission for the purpose of helping to identify others.. Walk a Mile in My Shoes Coming November to Locations near You!.. November and the annual worldwide Walk a Mile in My Shoes XXYY Project fundraiser to raise awareness of XXYY Syndrome is fast approaching.. Click here to learn more!.. 48 XXYY Awareness Day.. February 17, 2012 marks the second annual 48 XXYY Awareness day: A day to raise awareness about this  ...   Each day starting on February 18th, you can read a story about what a day in the life of being a parent with a child with 48 XXYY Syndrome is like.. Did you see us on television?.. Do you need help for your son or daughter?.. Click here to read more information.. View our Public Service Annoucement.. (Thanks to KTVD UPN 20).. Did you benefit from our website? Would you like to help the XXYY Project to achieve our goals?.. Please make a tax deductible donation today!.. This website is designed for educational purposes only and is not intended to serve as medical advice.. This website does not warrant the information in this site to be accurate or complete.. It is also not responsible for omissions or errors, or for the results of using this information.. This site has used its best efforts to provide information that is current and accurate.. Medical science is constantly changing, and human error is always possible.. Contact Us.. Copyright 2003-2012.. All rights reserved..

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  • Title: XXYY Syndrome and the XXYY Project
    Descriptive info: Deutsch.. Herzlich Willkommen auf der Website über das XXYY-Syndrom und das XXYY-Projekt.. Sie finden hier Informationen zur medizinischen Forschung, zu Therapien, über finanzielle Ressourcen, frühkindliche Förderung, Schul- und Ausbildungsmöglichkeiten sowie allgemeine Informationen über diese seltene genetische Abweichung.. Eine yahoo-gruppe betroffener Eltern wie auch Foren in verschiedenen Sprachen bieten betroffenen Eltern emotionale Unterstützung.. Das XXYY-Projekt ist eine ehrenamtlich arbeitende Organisation betroffener Eltern.. Lernen Sie mehr über die Symptome und Charakteristika von XXYY-Kindern und Männern.. Alle auf dieser Seite eingestellten Fotos sind mit  ...   Die folgende Information ist für Eltern und Betreuer, bei deren Kindern irgendetwas nicht stimmt , gedacht.. Irgendetwas stimmt nicht.. Diese Website dient lediglich zur Information und nicht als medizinischer Rat.. Diese Website garantiert weder Vollständigkeit noch Fehlerfreiheit.. Sie ist außerdem nicht für Fehler und Auslassungen oder für die Folgen die aus der Nutzung der Informationen entstehen, verantwortlich.. Diese Website bemüht sich, alle Informationen genau und korrekt bereit zu stellen.. Die medizinische Forschung unterliegt einem stetigen Wandel und menschliche Fehler sind immer möglich..

    Original link path: /deutsch.html
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  • Title: XXYY Syndrome and the XXYY Project
    Descriptive info: Bienvenue au Projet XXYY.. Bienvenue au centre d'informations à propos du syndrome XXYY et du Project XXYY.. Ici, vous trouverez des ressources pour vous soutenir et vous éduquer, ainsi que de l information sur les recherches médicales, et sur cette condition génétique.. Apprenez à connaitre les symptômes et les caractéristiques du Syndrome XXYY et comment devenir impliqué avec notre groupe de soutien et avec le Projet XXYY, une organisation à but non-lucratif.. Toutes les photos de garçons et d'hommes avec XXYY incluses dans ce site, sont utilisées avec  ...   vous plaît, sur le document à droite pour plus de renseignements.. Quelque chose n est pas comme-il-faut.. Ce site Internet est conçu à buts éducatifs seulement et n'est pas destiné pour servir à d'avis médical.. Ce site Internet ne garantit pas que les renseignements contenus sont exacts ou complets.. Ce site n est pas responsable d aucune omission ou erreur, ni d'aucuns résultats basés sur ces renseignements.. Ce site vise a fournir des renseignements courants et exacts.. La science médicale change constamment et des erreurs humaines peuvent toujours survernir..

    Original link path: /fran%C3%A7ais.html
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  • Title: Walk a Mile in My Shoes
    Descriptive info: Walk a Mile in My Shoes.. The 2012 Walk is Approaching!.. In the autumn sun and winds of November 2011, 4 teams from around the world; consisiting of more than 200 individuals of all ages; walked 1 mile to raise awareness of 48XXYY Syndrome.. In accomplishing that, they also raised over $8962.. 00 in cash and prizes for the XXYY Project - dedicated to raise awareness, educate, direct, and support males, their families and medical community to assist in leading purposeful and productive lives.. This year again, on November 24, 2012, in a  ...   XXYY Project.. For more information on how.. YOU.. can participate and/or help - please email.. walkamile@xxyysyndrome.. org.. This year's Walk a Mile in My Shoes T-Shirts.. have been donated by.. The Adair Group.. (.. www.. theadairgroup.. com.. ).. Screen printing for the tshirts was.. graciously donated by.. Rose Key, Advertising Matters.. advertising-matters.. All donations of 100$ or more will receive a tshirt!.. Sponsor a Team.. Team:.. Divide my donation amongst all teams.. Brampton On (Batthish).. Delafield Wi (Rakowski).. Selkirk NY (Welcome).. Amount($USD):.. Fundraising Goal.. Walk participants, download and use the pledge sheet.. here..

    Original link path: /walk.html
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  • Title: 48 XXYY Awareness Day
    Descriptive info: XXYY Syndrome Awareness Day.. February 17th, 2012.. 2012 marks the second annual 48 XXYY Syndrome Awareness Day.. Join us by learning more about this rare genetic disorder,.. raising awareness.. and in participating in our.. 48 Days in the Life.. 48 XXYY Syndrome affects between 1 in 14,000 and 1 in 17,000 males, yet most of these individuals are not diagnosed or misdiagnosed.. Only approximately 250 families.. worldwide.. belong to the XXYY Project's family network, which is much less than the 8906-10,814 males while are likely affected.. in the United States alone.. This syndrome is rare and only in 2008, thanks to Dr.. Tartaglia and the XXYY Project was any research on a group of males with 48 XXYY published.. Previously, only single case studies and research on prison populations gave any insight into this syndrome.. More research is needed.. The most common symptoms  ...   Low or no testosterone.. Dental problems.. Leg ulcers.. Intention tremors (hand).. Sensory Processing Disorder.. Not all males with 48 XXYY Syndrome have all these symptoms, and more information and research on treatments for these symptoms is needed.. Families who struggle with incomplete diagnoses need to know the full picture in order to help their sons reach their full potential.. Parents, doctors, dentists, speech therapists, occupational therapists and teachers should be aware of the varied symptoms of this syndrome, and consider requesting a karyotype to either rule out or confirm a diagnosis of 48 XXYY.. With full awareness of XXYY Syndrome and its symptoms, families and individuals affected by 48 XXYY Syndrome are able to deal with this complex syndrome but understanding from doctors, dentists, speech therapists, occupational therapists and teachers is needed to improve the quality of life for those affected.. Raise Awareness.. Donate..

    Original link path: /48xxyyawarenessday.html
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  • Title: XXYY Project - 48 Days of Celebration
    Descriptive info: To help increase awareness on our second annual 48 XXYY Awareness Day (Feb 17, 2012), we are having 48 Days in the Life of 48 XXYY.. Check back daily to read stories about what its like in a day in the life for parents of  ...   3.. 4.. 5.. 6.. 7.. 8.. 9.. 10.. 11.. 12.. 13.. 14.. 15.. 16.. 17.. 18.. 19.. 20.. 21.. 22.. 23.. 24.. 25.. 26.. 27.. 28.. 29.. 30.. 31.. 32.. 33.. 34.. 35.. 36.. 37.. 38.. 39.. 40.. 41.. 42.. 43.. 44.. 45.. 46.. 47.. 48..

    Original link path: /48daysofcelebration.html
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  • Title: XXYY Syndrome and the XXYY Project
    Descriptive info: Information for Parents.. For parental inquiries or assistance, please contact.. Melanie Meyers.. , Family Support Manager:.. e-mail:.. inquiry@xxyysyndrome.. Phone: (215) 394-5942, 8am-9pm Eastern Time (EST).. Information for Teachers.. For teachers with questions about IEP's and behavioural issues in XXYY, please contact.. Val Kellogg.. , teacher and the mother of a young man with XXYY:.. education@xxyysyndrome.. Information  ...   please contact.. Ashi Daftary.. , MD and.. Janeen Daftary.. , RN:.. medical@xxyysyndrome.. Information about The XXYY Project.. For inquiries regarding the XXYY Project organization, please contact.. Linda Prudhomme.. , Executive Director:.. director@xxyysyndrome.. Phone: (303) 910-3326.. The XXYY Project.. PO Box 2172.. Littleton, CO 80161-2172.. Für untersuchungen auf Deutsch:.. germaninfo@xxyysyndrome.. Pour les enquêtes en français:.. courriel:.. infofrancais@xxyysyndrome..

    Original link path: /contactus.html
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  • Title: XXYY Syndrome and the XXYY Project
    Descriptive info: Join the event on Facebook.. Add a Twibbon to you Facebook or Twitter profile picture.. Get cards to handout.. Order bracelets to handout.. to your contacts, friends and family..

    Original link path: /raiseawareness.html
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  • Title: XXYY Project - Donate
    Descriptive info: Donate to the XXYY Project.. (a project of the Colorado Nonprofit Development Center).. Your tax-deductible donation to the XXYY Project will help us to:.. Establish effective ways to teach males with XXYY Syndrome.. Develop more appropriate treatments for XXYY Syndrome.. Educate parents and the public about XXXY Syndrome.. Identify more cases of XXYY Syndrome.. Bring males and families together.. Generate research on XXYY Syndrome.. Assist families to pay for medical treatment.. Find the true cause of XXYY Syndrome.. Develop  ...   focus on genetic disorders helps to ensure that we all receive answers and can prevent these disorders in the future.. Make your check or money order payable to:.. Colorado Nonprofit Development Center FBO XXYY Project.. Send to:.. PO Box 2172.. (Please include the form below with your donation).. You can also donate by credit card by using the form below.. Print the form below, complete it and send it to the above address.. Donation form - Print Include with donation..

    Original link path: /donate.html
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  • Archived pages: 9