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    Archived pages: 1 . Archive date: 2013-05.

  • Title: Xeroderma Pigmentosum Society
    Descriptive info: .. Xeroderma Pigmentosum Society.. Menu.. Skip to content.. Home.. News.. Board of Directors.. Parents Caregivers.. How to Help.. The XP 1500 Club.. Global XP Appeal.. Research Discovery.. Students/Research.. Scientific Advisory Board.. James E.. Cleaver, Ph.. D.. Professor Brian Diffey.. W.. Clark Lambert, M.. , Ph.. Joseph Malak, MD.. Alain Sarasin, Ph.. Camp Sundown.. Camp Sundown Clowns.. Stars Above.. Contact Us.. Welcome.. Learn about xeroderma pigmentosum (XP) , a rare genetic disease, and about the Xeroderma Pigmentosum Society (XPS), dedicated to helping XP families, patients and those afflicted with similar life-threatening sun-sensitivity disorders.. The XP Society is a 501(c)(3) not-for-profit charitable organization founded in 1995 by Caren and Dan Mahar, whose  ...   XP.. The XP Society has always been international in its scope and support, since its beginning.. The XP Society offers information, support, advocacy, and protection to the XP family, patient and caregiver while promoting research for a cure.. Disclaimer: These pages are developed by XP families for information and support and should never replace a medical visit or recommendation.. Leave a Reply.. Cancel reply.. You must be.. logged in.. to post a comment.. XPS.. ORG.. This site is forever dedicated to:.. Pat Mannix.. Recent News.. Keybank Cleans Up.. May 30, 2013.. Camp Sundown 2013.. May 5, 2013.. Sponsor a family for Camp Sundown 2013.. May 29, 2013.. Proudly powered by WordPress..

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