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    Archived pages: 93 . Archive date: 2013-08.

  • Title: The J-Pouch Group
    Descriptive info: .. Welcome.. to the first site on the web dedicated to the Ileo-anal anastomosis, or J-Pouch operation.. Join us for support and information regarding this procedure.. We hope to bring you the most information on the web as you plan for the operation or are dealing with life after suffering with Ulcerative Colitis, Cancer or familial polyposis.. This site is made possible through.. the generosity of our members and by.. the donations of:.. Living life to the fullest!.. *New*.. Discussion Board.. A message board to post messages and correspond with other patients.. Chat.. Chatroom open 24 hours a day.. Illustrated Pouch.. 3D Illustrations help you to understand how the J-pouch is built.. IBD Links.. Internet links to areas  ...   Answers.. Commonly asked questions about surgery, complications, etc.. Support Groups.. Find a support group.. COCO Bidet Toilet Seat.. upgrade your existing toilet with a COCO Bidet.. J-Pouch Index.. What is a j-pouch?.. Discussion board.. Chatroom.. Success stories.. Illustrations.. Links.. Common Questions.. Guestbook.. About us.. J-Pouch Group Pictures.. FAQ's.. Support.. Donate to our site.. Mailing list.. Contact.. Find a surgeon.. Sponsor-Calmoseptine.. Sponsor-Ilex.. Sponsor-Hygiene for Health.. Sponsor-VSL Probiotics.. Honors request.. Honoring.. Find a buddy.. Illustrated pouch.. Support group meetings.. Home.. |.. what is a j-pouch.. discussion.. q a.. contact.. about.. illustrated pouch.. success.. Register.. to post messages.. chat.. guestbook.. ibd links.. dietary guidelines.. faq's.. donate.. | mailing list |.. support.. j-pouch people.. Copyright 2006 The J-Pouch Group.. All rights reserved..

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  • Title: Success stories
    Descriptive info: Do you have a successful J-pouch? Or an interesting story about your J-pouch experience?.. If you would like to share your story, please write about your experiences and submit your story to.. Success Stories.. If we choose your story we will present it here on our success stories page.. If you have the capabilities on your computer, you can attach a photo of yourself to your e-mail.. More success stories.. Gayla Rye's story.. I hope my story helps someone out there.. Life is good! You just have to be patient and strong because it is not easy.. I feel if you can overcome this disease and all the surgeries you have done something.. !.. My name is Gayla Rye and I am teacher from Southaven,MS (near Memphis, TN).. When I was 26 years old I got diagnosed with Ulcerative Colitis.. I had no idea what this was and how it was going to affect the rest of my life.. I did a little research, but thought the worst would never happen to me.. Little did I know, by January of 2005 I was confined to my house with frequent and painful trips to the bathroom all day and all knight.. I was loosing a lot of blood and had become very weak at this point.. Still, I never dreamed of being put in the hospital.. I finally went in to see my GI doctor and he gave the option of being admitted into the hospital or just trying some more extensive treatments of steroids (which a month earlier had worked and put me into remission).. By the way, my GI doctor was from Columbus, MS.. I was admitted into the hospital and discovered I was 5 weeks pregnant ( I guess this is what set me in an uproar).. I elected to try and carry the pregnancy to full term.. The doctors told me that if I had a total colectomy I may not be able to conceive in the future.. I stayed in the hospital off and on for three weeks.. MY GI doctor kept telling that I was not as sick as I was making out.. I was in HORRENDOUS pain.. I was vomiting profusely and having VERY painful bloody stools.. I kept begging for the surgery and my doctor felt it wasn't necessary since he had other patients way worse than me.. So anyway, My mother and mother -in-law drove me two hours way to University of Alabama at Birmingham Hospital to try and see if I could get admitted to the ER.. I didn't have any success because they did not run a scope so therefore could not see the seriousness.. I guess my white blood count wasn't very high at this point.. My hematocrit was also okay so, they sent me home with follow for one of their GI doctors.. I had to get thought the weekend and I was terrified, I felt I wasn't getting the medical care I should be given.. I knew something wasn't right.. I was sicker than I had ever been.. This made the flu feel like a peace of cake.. I wasn't eating or drinking, all I was doing was vomiting and having some form of diarrhea.. I was VERY scared.. Monday 3/07/05 rolled around and we set off for Birmingham, AL again.. I woke up that morning so sick I could not muster up the energy to get into the car.. My husband was begging and pleading and all I could do was cry ( I was soooo sick at this point).. My mom husband loaded me up on Phenergan Lortab, hoping that would knock me out until we could get there.. He drove 100 mph and I laid in the back of our Jeep Cherokee with the seats laid down like an ambulance.. I just prayed to God the whole way.. Luckily, we made it and I was wheeled into the waiting room vomiting the whole way.. I was admitted as soon as the doc had seen me.. He could not do a colonoscopy until that Thursday so they tried to stabilize me by giving me fluids, pain meds, blood transfusion( bc I had lost so much blood at this point), and steroids again (since you have to taper off them).. I started fainting everytime I had to get up to go to the restroom.. After the scope, the doctor scheduled emergency surgery for a Total Colectomey with end ileostmy.. I had no idea what this meant.. I didn't care, I just wanted to be healed.. The Ostomy nurse came in and drew on my  ...   but it eventually fell off.. I was losing hair by the handfuls.. I hadn't had a bath or brushed my teeth in I don't know when (I was in HELL).. After a week in ICU, I was released back down to the floor.. I was still sick and couldn't walk.. I had a catheter and chest tubes.. The chest tubes were the most painful of everything I experienced.. I feel for anyone that knows what I am talking about.. I got out of the hospital Easter Weekend.. I was still so sick and I told the doctors, but said it would take time.. I had to be put back in the hospital 2 weeks later because of dehydration.. After a week, I went home still struggling.. My mom had to maintain the ostomy bag for me because I was still vomiting and just couldn't do it.. I was scared of it.. The doctors told me after surgery that my colon was the worst they had ever seen and it should have come out a long time ago.. I felt horrible until right before my J Pouch construction surgery.. It took about 3 months to feel well again.. I was exercising again.. On July 12, 2005 I went back in for surgery.. Everything went well, I was released in four days.. Sore, but okay.. The nausea came back, but I tried to deal with it by taking Zofran.. I started having flu like symptoms and called the ER.. They advised me to go to the nearest ER and have a CAT Scan since my fever was climbing.. Sure enough, I had an abscess.. Back to the hospital for a week.. The Interventional Radiologist put a T drain in my butt.. It hurt!!!! So, I walked around with a tube out of my butt cheek and one out of my abdomen.. It was awful.. I kept it in for a month.. Back and forth to the hospital for fevers because the abscess wasn't going away.. By this time, it was time for my takedown.. Had lots of complications (fistula, no BM's, etc.. ).. I had a NG tube for a week and a half.. They had to open right back up after the takedown to repair the fistula.. I was in the hospital a month this time.. This hospital stay was a bad one.. Once my bowels woke up it was the WORST.. That lasted even for a while after I got home.. I also had to go through physical therapy to learn to walk again basically.. I was so weak.. Again, I was released still feeling very sick.. It took about 3 months again to start feeling better.. I know my story sounds like gloom and doom, but it is now April 1st and am doing great.. I still have about 6 - 8 BM's a day and sometimes more, but other than that I can't complain.. I am getting used to my system and feel great! I wanted to be detailed in my story because I think It is important that others that may have to go through similar experiences know that they aren't alone.. I felt so alone because everyone I was in contact with that had my surgery experienced no complications and had elected to have this surgery.. All I am trying to say is, if I had someone to talk to that had some similar experiences, it would have helped.. J Pouch.. org has been wonderful to have.. I was able to calm down after reading other people's success stories.. If anyone ever need to talk I will always be here if I can help in any way.. I thank God everyday that I have my life back.. We are now trying to conceive.. The doctors are optimistic, but I guess we will see what happens.. We don't have children yet and I am approaching 30 so we thought if I do have problems with fertility we better go ahead and find out now.. Be strong and God Bless! I also wanted to say that my surgeon at UAB was wonderful.. All of the staff took great care of me there.. Gayla Rye.. --- More Success Stories ---.. Patrick Edinga.. Matt Martin.. Alyssa Mehalshick.. Jenalee Garrett.. Beth Greene.. Dixie Rogers.. Kelly McCartney.. Stephen Bailey.. Patrick Hall.. Stephanie Zinser.. Alex Camacho.. Samantha Czosnek.. Jolene Marek.. Jude LeBlanc.. Joslin Yaacoubian.. cyndi conner.. Heather Morris.. Larry Verhaeghe.. Miss Kris.. Return to HOME.. *.. Health Products.. Health Products.. used to aid the.. digestive system.. include.. Apple Pectin.. ,.. Fiber Food.. , and.. Chitosan.. Others are.. Bromelain.. and.. Psyllium husk..

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  • Title: Welcome to J-Pouch DigiChat!
    Descriptive info: Welcome to our J-Pouch DigiChat Java Chat Site.. Please wait until the login screen appears below, it should appear in less than one minute! Please read the rules first, then.. Have Fun Chatting.. We now have private rooms instant messaging.. Even a list of who's here and who's not.. A special THANK YOU to all those who have made donations and whose generosity over the years have made our site such a success.. Please remember.. , this is not a private chat.. Please be polite and include all those who's names you see are logged on with you.. We suggest you use your discussion group name so people might know each other.. When we have guests, a log will be kept and archived for those  ...   web site and chat room should not be used for diagnosing or treating a health problem or a disease.. It is not a substitute for professional care.. If you have or suspect you may have a health problem, you should consult your health care provider.. NOTE:.. Our Thursday night chats are for discussion only.. The moderator or chatroom participants are not medical professionals and do not diagnose or advise treatment.. You agree to these terms by typing your username and clicking CONNECT below.. Problems getting into chat? Click here!.. Click here to see transcripts of Dave H's thursday night chats.. Remember, Thursday night at 9PM EST is chat night with Dave.. Questions, comments, or difficulties, please contact us.. webmaster@j-pouch.. org.. Copyright 1998-2006 Digi-Net Technologies, Inc..

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  • Title: Useful links
    Descriptive info: IBD Resources.. True Guts: Struggle and Triumph over Crohn s Disease and Ulcerative Colitis.. , a nationwide inspirational movie,.. Teen ibd.. , a site for teen sufferers of IBD.. The United Ostomy Association.. the primary ostomy support organization.. UOA includes a number of National Networks, one of which, our.. Continent Diversion Network, includes quite a few J-Pouch patients.. University of Pennsylvania Digestive Liver Center.. A comprehensive new web site from one of the country's best hospitals for gastrointestinal care.. CCFA Home page.. CCFA finally gets on the web and the wait was worth it.. Check out this new site.. Also CCFA Canada.. Massachusetts General Hospital.. the oldest and largest of the Harvard Hospitals,they have a great interest and experience with inflammatory.. bowel disease and polyposis in general, and restorative proctocolectomy inparticular.. Crohns-Colitis Home Page.. A great link to lots of resources and info  ...   site.. Dr.. Paul McMurrick FRACS is a colorectal surgeon in Melbourne, Australia.. He was trained at the Mayo Clinic.. Cleveland Clinic Colorectal Surgery.. The first colorectal page on the internet from one of the world's finest hospital.. POUCH O GRAM.. The great quarterly newsletter from the Cleveland Clinic.. Cleveland Clinic IBD program.. The IBD Quilt Project.. Think AIDS Quilt and you ll get the idea.. IBD Page by Dr Stephen Holland.. News and tools related to inflammable bowel disease.. Ileal Pouch Reconstruction.. University of Wisconsin Medical school, department of surgery home page.. Dedicated to the Pelvic pouch.. Dr K's Gastrointestinal diseases web page.. Hosted by Dr.. David Kammerstein.. Dedicated to providing accurate, up to date information to medical professionals and the public regarding gastrointestinal and liver disease.. If you would like more information, have a question or comment, write to:.. J-Pouch Questions.. Webmaster..

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  • Title: What is a J-Pouch?
    Descriptive info: An overview of pouch surgery.. by Linda B Hurd.. Kegel Exercises.. exercises to increase anal muscle strength.. Grace's Corner.. (Frequently asked questions).. An Overview of Ileoanal Reservoir (Pouch) Surgery.. Linda B.. Hurd, RN, MSN.. The ileoanal reservoir procedure is a surgical treatment option for chronic ulcerative colitis, colon cancer and familial polyposis patients who need to have their large intestine (colon) removed.. An ileoanal reservoir (or pouch) is an internal pouch formed of small intestine.. This pouch provides a storage place for stool in the absence of the large intestine.. Anal sphincter muscles assist in holding in the stool.. Several times a day, stool is passed through the anus.. Ileoanal reservoir surgery is a widely accepted surgical treatment for ulcerative colitis or familial polyposis because it eliminates the disease, gives the patient control of bowel movements and does not require a permanent ileostomy.. Each patient considering this surgery is carefully evaluated to determine if this procedure is appropriate for them.. This procedure is performed in one, two or three stages, but is most often done in two stages, usually 2-3 months apart.. Stage I:.. The first surgery removes the entire large bowel and the lining of the rectum, but leaves the rectal muscle intact.. A reservoir or pouch is made out of small intestine and then is connected to the anus.. Next, a temporary ileostomy is made.. An ileostomy is a surgically created opening between the small bowel and the skin of the abdomen through which stool and gas are passed.. This temporary ileostomy diverts the stool; protecting the reservoir (pouch)while it heals.. (.. See figures 1, 2 and 3).. What to expect after the first surgery:.. In the initial weeks after surgery, waste material coming through the ileostomy is liquid but then begins to thicken.. A good diet with increased fluid intake is needed to keep well hydrated and nourished.. Patients wear an ileostomy appliance  ...   at the former ileostomy site is usually left to close on its own.. (See figure 4.. ).. What to expect after the second surgery:.. Once a patient starts passing stool through the anus, stools are frequent and liquid.. There may be accompanying urgency and leakage of stool.. All of these aspects improve over time as the anal sphincter muscles strengthen and the pouch adapts to its new function.. Stools become thicker as the small intestine absorbs more water.. In addition, medications to decrease bowel activity and bulk-forming agents to thicken the stool may be prescribed.. Patients can help during this adaptation process by avoiding foods that may cause gas, diarrhea and anal irritation.. Careful skin care around the anus will protect the skin from the irritation of frequent stools.. Continuing anal sphincter muscles exercises (.. ) during this time is also beneficial.. After six months, most people can expect about five to six semi-formed bowel movements during the day and one at night.. The pouch takes up to one year to fully adapt.. In most patients, functioning of the pouch continues to improve over time.. General Considerations:.. When considering and undergoing this surgery, all patients and their loved ones have concerns and questions.. Sometimes they feel isolated and frightened.. It is helpful for all involved to receive general information about this surgery and understand what to expect during the course of these procedures.. In addition, patients and family members may be interested in contacting an ileoanal support group, which provides a place to learn more about this surgery and to meet others with similar concerns and experiences.. Be sure to talk with your gastroenterologist, surgeon or ET nurse about these issues and keep in close contact with them during the surgeries and throughout the rehabilitation process.. Patient satisfaction with this surgery is high and with both ulcerative colitis and familial polyposis patients, their disease is cured!..

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  • Title: Dietary Guidelines
    Descriptive info: Ileoanal Pouch Surgery.. Dietary Guidelines for Ileoanal Pouch surgery (Main article).. Dietary Modifications after the first surgery.. Dietary Suggestions after second surgery.. Foods and Beverages that may cause loose stools.. Foods thet may cause gas and odor.. Foods that may increase output.. Foods which may decrease output.. Foods which may contribute to anal irritation.. References.. DIETARY GUIDELINES FOR ILEOANAL POUCH SURGERY.. By Linda B.. Hurd, RN, MSN and Maryann King, RD.. G.. ood nutrition plays an essential role in gaining and maintaining health and vitality.. Patients and family members generally have many questions about diet and nutrition following ileoanal surgery.. Below are listed guidelines that can assist you in maintaining good nutrition and enable your body to adapt as easily as possible to it's new anatomy and digestive system.. Please keep in mind that each individual responds to surgery and the recovery process differently and therefore will need to find a diet approach that works best for them.. For example, a food that causes a problem to one person may not cause a problem for another.. There is quite a bit of trial and error that takes place during these months.. Try to be patient and assure yourselves that eventually you will find a diet that works for you!.. Below are listed some general dietary tips for ileostomy/ ileoanal pouch patients:.. 1) Eat a balanced diet.. (i.. e.. sensible flood choices from all food groups, break (starches), fruits, vegetables, and proteins).. 2) Eat slowly and chew your food well.. 3) Drink plenty of fluids each day.. more than 8 cups of fluid per day).. 4) Add foods to your diet gradually to see how your body responds.. 5) *Watch food that are high in fiber, sometimes these foods can cause blockages.. 6) *Avoid nuts seeds and corn.. *(These items pertain to patients with an ileostomy and to patients during the several months following ileostomy closure.. DIETARY MODIFICATIONS AFTER THE FIRST SURGERY:.. (with a temporary ileostomy).. Ileoanal surgery is generally performed in two stages.. The following will outline dietary considerations for each of these stages.. During your first surgery your colon (large intestine) is removed.. One of the primary roles of the colon is to absorb fluids.. With the large intestine gone, larger quantities of fluid are lost with the stool from your ileostomy.. Your body will adjust to the absence of the large intestine as your small intestine learns to absorb more fluids.. In the meantime, you will need to increase your fluid intake to make up for the fluid loss and avoid becoming dehydrated.. The initial post-operative diet will be clear liquids and gradually advanced to a low residue diet.. Many patients can eventually tolerate a normal diet; however, some adjustments may be required to prevent obstruction, watery ostomy output, excessive odor and gas.. The advantage of this stage for many patients, particularly for those who have been very ill or on a very restricted diet prior to surgery, is that once again they can enjoy eating and include foods they have missed for a long time!.. Again, because of the large amounts of fluids that are lost through the ostomy, particularly during those early weeks following surgery, patients need to be aware of the symptoms of dehydration.. Symptoms to watch for are:.. Extreme thirst.. Dry mouth and dry skin.. Shortness of breath.. Decreased urine output or urine that is dark in color.. Nausea or abdominal cramping.. Achiness.. If you feel you are dehydrated, notify your doctor immediately.. Tips to prevent hydration:.. Drink at least 6 to 8 glasses of fluids a day.. Drink a combination of water and  ...   radishes.. pickles.. fish.. cucumbers.. strong flavored cheeses.. melons.. spiced foods.. fatty foods (pastries/deep fried foods).. whips and meringues.. Other general guidelines:.. avoid chewing gum,.. Do not use a straw, Chew with mouth closed,.. Eat regular times; Add cranberry juice, yogurt, and buttermilk.. TIPS:.. When a food causes a problem, it should be eliminated temporarily, and then tried again at a later date.. There is some adaptation in time.. Boiled milk, rice, creamy peanut butter, and potatoes may be used as binding foods.. in some patients.. Some foods that can help thicken your stools are: applesauce, bananas, buttermilk, cheese, marshmallows, pretzels, toast, yogurt, and tapioca pudding.. The goal of your diet should he to maintain a well balanced diet and make food choices from all the food groups.. DIETARY SUGGESTIONS AFTER SECOND SURGERY FOR.. ILEOANAL POUCH:.. For the months following surgery (up to one year) the pouch will go through a period of adaptation.. The pouch storage capacity will increase and the number of bowel movements per day will decrease.. Stool consistency thickens over time.. Diet and medication can help to improve pouch function.. You may find that by altering your diet a bit it can help to slow down bowel function and prevent perianal irritation.. SUGGESTIONS.. :.. 1 ) Follow the same diet you were on previously to slow down the digestive process and.. allow the pouch to enlarge; this will decrease the number of bowel movement.. 2 ) When adding new foods to your diet, you may want to refer to potential problem list and initiate slowly.. If a particular food is not tolerated, try it again at a later time.. 3 ) Continue to drink six to eight glasses of fluid each day.. 4 ) High potassium foods will be needed in the presence of diarrhea.. 5 ) Limit the intake of foods high in simple sugars since these can aggravate diarrhea.. 6 ) Eat regularly, don't skip meals.. Remember, increase gas is produced when bowels are empty.. 7 ) Eat small frequent meals.. 8 ) Sometimes eating rice, potatoes, or pasta once per day may help reduce stool frequency and perianal irritation.. FOODS THAT MAY INCREASE POUCH OUTPUT:.. The following foods can affect ileoanal pouch functioning:.. raw fruits and vegetables (especially broccoli, beans and spinach).. leafy green vegetables.. spicy foods.. alcohol.. caffeine containing beverages.. chocolate.. FOODS WHICH MAY DECREASE POUCH OUTPUT.. :.. applesauce.. bananas.. boiled rice, pasta.. cheese.. creamy peanut butter.. tapioca pudding.. potatoes (without skins).. FOODS WHICH MAY CONTRIBUTE TO ANAL IRRITATION:.. certain raw fruits and vegetables (e.. g.. , oranges, apples, coleslaw, celery and corn).. popcorn.. Chinese/oriental vegetables.. nuts.. coconut.. dried fruits (e.. raisins, figs).. food with seeds.. Once again you will find that diet and food tolerances are very individual.. The lists above are not meant to make your diet selections a chore, rather to assist you in modifying your selections should you encounter some difficulties.. Patience is a virtue during the early weeks following your second surgery.. Keep in mind though that you are well on your way to good nutrition and healthy lifestyle.. 1.. ) Hurd, Linda.. Presenting a patients guide to ileoanal reservoir procedure.. Ostomy/.. Wound Management 1992; 38(5)2-60.. 2.. ) Providence Medical Center Nutrition Services.. Nutrition and Dietary Guidelines for use with the ileoanal reservoir (booklet).. Sisters of Providence Health System.. 3.. ) Zeman, Francis.. Clinical Nutrition an Dietetics.. 2nd Edition.. NY: Macmillan.. 1991; 272-274.. 4.. ) Rolstad, Bonnie Sue and Rothenberger, David.. Ileoanal reservoir: a patient resource Minneapolis: The Upjohn Company.. 5.. ) Chapman, Georgina.. A patient handbook for the ileoanal reservoir procedure.. Calgary.. District Hospital Group.. Montreal: Convatec..

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  • Title: Pelvic exercises
    Descriptive info: Pelvic (Kegel) Exercises.. Purpose.. To strengthen the tone of the anal sphincter muscles.. Sphincters.. A group of specialized muscles that allow you to control your bowel functions.. Early Exercises:.. Pelvic exercises may be started before surgery and safely resumed three weeks after surgery.. During the immediate post-operative phase, while you are still in the hospital and up to three.. weeks after your surgery, your tissues and muscles are healing.. When this initial healing has.. occurred, you may begin to resume theses exercises.. Method of Exercise:.. Tighten your sphincter muscles as if you are stopping a bowel movement.. While squeezing tightly,.. hold for a  ...   set.. You should complete six to ten sets a day, or as prescribed by your doctor.. These may be performed any time during the day, and while you are in any position -- sitting, standing.. or lying down.. Also, since they require no special positioning, you may do them while working at any.. location, while driving in your car, or even while watching television.. Follow-up:.. When you visit the out-patient clinic for your final exam, your physician will advise you as to the.. continuation of these exercises.. If you have any questions, please do not hesitate to ask your.. surgeon or ET nurse..

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  • Title: Q & A
    Descriptive info: Here is a sample of some of the questions you have asked with the answers below them.. I am sorry we can no longer answer private email as Grace has retired.. Please go to our discussion site where your questions will be answered online.. Bill.. Surgery and Crohn's.. Dear Grace,.. Can you try to explain why surgery is not permitted for Crohns patients?.. Can it cause the patient to get worse?.. Thank you for your question.. Keep in mind that Crohn's disease can involve any segment of the GI (gastro-intestinal) tract from mouth to anus and can effect all layers of the bowel ie.. the mucosal, muscular and outer layer.. Ulcerative Colitis effects only the large bowel or colon, and only involves the mucosal or inner layer of the colon.. Briefly, in ulcerative colitis, removing the colon removes the organ that is diseased and therefore removes the disease.. It is the cure for ulcerative colitis.. No more colon, no more disease.. In Crohn's disease however, the small bowel (intestine) is frequently involved.. Removing the colon in Crohn's disease patients does not eliminate their disease because the disease can flare up in the remaining small intestine.. Therefore, this surgery would not be a cure or solution for Crohn's disease patients.. Grace.. Chronic Pouchitis.. Dear Grace,.. I have chronic pouchitis.. Currently take Flagyl orally.. Looking for alternatives.. Thanks.. As you are probably aware, the cause of pouchitis is not known.. One of the factors that may contribute to chronic pouchitis is that the pouch may not be emptying adequately with each bowel movement.. This incomplete emptying causes stasis of the stool- in other words- stool lying in the pouch for prolonged periods of time, lending itself to overgrowth of certain bacteria causing pouchitis.. Sometimes by supplementing the diet with apple pectin (or other fiber products such as metamucil or citrocel) it helps with consistency and ability to eliminate the stool more completely.. Also consider altering the body flora (with beneficial bacteria) by adding plain yogurt or acidophyllis milk or tablets.. People on antibiotics for a long time upset the normal body flora.. No promises, but hope this will help.. Please keep in touch.. Good luck,.. Obstructions.. Have you heard of anyone having small bowell obstructions at the site of reconnecting the stoma, or where the bag was.. I seem to have blockages pretty frequently, about every weekend.. I don't know exactly what causes it but I feel it is a combination of scar tissue at the area of reconnecting the small intestine, water loss, Gas, and foods not broken down enough with chewing.. I have noticed that the obstructions are not as intense as they were 2-3 months after my 2nd step surgery.. I am now in my 10th month after, and this is my biggest problem.. I just lie down and watch the intestine swell up and bulge out at the site where my bag was.. After about an hour I'll hear and feel a pop and the food will pass thru the area of the blockage and then all is ok.. The fact the blockages seem to occur mostly on the weekends makes me question your lifestyle changes on the weekend or any dietary changes.. Some people do mention minor discomfort in the area where the stoma was located.. Keep in mind that during the time that patients have a diverting ileostomy, there is a segment of bowel connecting to the j-pouch that is at rest.. (Take a look at Figure 3 in What is ileoanal surgery article? on this website and look at the segment of bowel traveling  ...   I don't have gross incontinence, but the leakage is annoying and somethimes causes irritation.. Is this normal in some cases? My surgeon says that we will eventually win and it will stay open.. Is he right?.. Anal strictures do occur, although not too often.. Leakage occurs as it narrows, usually secondary to the pouch not being able to empty efficiently.. Your surgeon is right.. It will eventually stay open.. The problem is caused by scar tissue which is broken up with the dilation.. Eventually it no longer forms.. Hang in there.. Good health.. Fistulas.. Hello,.. I had j-pouch surgery 4 years ago due to Ulcertive Colitis and have been very happy with the results with one exception.. About a year ago I began having some problems which my doctor suspected to be pouchitis but discovered that I had two anal fistulas during examination.. I have been on antibiotics for one year now with the hope that the fistulas would go away but they have not and now my doctor is referring me to a surgeon.. Are anal fistulas common in persons that have pelvic pouches and what are the treatment options for the pelvic pouch patient with anal fistulas?.. Fistulas are not uncommon.. Sometimes they resolve with antibiotics.. In persistent cases you may need a temporary ileostomy (6-8 weeks at least) to allow it to heal without stool irritation.. Usually they heal on there own.. Patience is a virtue here.. Incontinence.. I had the stoma reversal on 11/19, went home the weekend before Thanksgiving only to return on Thanksgiving Day with a fistula.. Corrective surgery was done on Tuesday, 12/3, wherein 2 1/2 inches more of the bowl was removed.. I have been at home less than 2 weeks and I am taking Lomotil Imodium.. I am greatly concerned with the incontinence.. Because I move so little stool at one time (with little control), I must stay on or near the toilet for an hour, or hour a half, before the urge to eliminate stops.. Is this common? If so, how long before it improves?.. Is there anything else I can do to improve my situation in the meantime?.. Thank you for making the Q A available.. I feel there should be more discussions about all the potential problems one might incur after the J-Pouch Surgery.. They should be discussed at length while still in the hospital.. After having the surgery and returning home, one needs to know what is normal and what is not so normal.. Thanks again!.. Only wished that you lived closer to Philadelphia because we have a fantastic group that discusses the surgery and problems.. You must be patient, the body has to adjust.. Remember your large bowel has been removed and your small bowel is now trying to take over that function.. A half hour to forty five minutes after eating you will probably get the urge to move your bowels.. As the pouch matures the urge will lessen.. Your mind set still goes back to the time of your U.. C.. and you are still afraid you cannot leave the bathroom.. Practice holding your bowel movement for as long as you can 5 minutes, 10 minutes, 15 minutes and increase the length of time each episode.. You will also learn how to discern between gas and stool.. Usually it takes anywhere from 3 months to a year to finally adjust.. Be patient with yourself, better days are coming.. The information provided through this ileoanal web site should not be used for diagnosing or treating a health problem or a disease.. Archives 1.. Archives 2..

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  • Title: Support Groups
    Descriptive info: please support our sponsors.. illustrations.. mailing list.. search.. Do you know of a support group that meets regularly? Please.. Contact us.. with info.. Pennsylvania.. Delaware Valley Ileonanal support group.. sponsored by: ccfa Delaware Valley.. where: Presbyterian Medical Center.. Dept.. of GI.. 218 Wright-Saunders bldg.. when: 2nd wednesday of the month, 7:30 p.. m.. contact: Marge Oteri, 215-698-2251 or Grace Williams 215-245-6230.. New York:.. Manhattan.. Mt.. Sinai support group.. where: Mt.. Sinai Hospital in Manhattan.. 1425 Madison Avenue, Room L3-82.. when: second Wednesday of every month at 6:30PM.. Rochester area.. Parks Support Group.. Meets twice a year, different locations.. For further information or to be included on our mailing list: barb.. macey@viahealth.. org.. Syracuse.. New York Ileoanal Reservoir Discussion Group.. Meets quarterly Tuesdays 7-9pm.. St.. Joseph's Hospital Directions at main lobby desk.. For meeting dates call 315-448-5853.. Washington DC:.. where:.. at Inova Fairfax Hospital, Conference Rooms D, E, and F above the Skylight Café.. when:.. Meetings are held on the first Sunday of every month (except July and August) The hospital  ...   North Carolina.. Raleigh-Durham-Chapel Hill Area.. J-POUCH / ILEOANAL POUCH SUPPORT GROUP.. MEETINGS:.. First Tuesday of every month.. TIME:.. 7:30 pm - 9:00 pm.. LOCATION.. Rex Hospital Surgical Waiting Room.. (just off the main lobby).. 4420 Lake Boone Trail, Raleigh.. CONTACTS.. Dan Wiley: 919-477-8363; dwiley6@earthlink.. net.. Lora Edgar: 919-451-1624; ledgar@nc.. rr.. com.. California:.. Orange.. where: St.. Joseph Hospital in the hospitals basement, Meeting Room A B.. when: every three months, Saturdays, 10 a.. to 12 noon.. contact: George Moro, M.. D.. host.. England.. Oxfordshire area.. The Kangaroo Club.. where: John Radcliffe Hospital.. For further information contact: Carol Johnston, Admistrator, Kangaroo Club.. Stomatherapy Department Level 6.. John Radcliffe Hospital.. Headington.. Oxford.. OX3 9DU.. or Tel: 01865 221839.. Canada:.. The.. Calgary.. J-Pouch meeting.. where: Calgary Co-op Downtown Market store.. Lounge area on the second floor.. 1130 - 11 Avenue S.. W.. Calgary, Alberta.. when: every 4th Wednesday of the month beginning at 7 PM.. visit their website at.. http://jpouchcalgary.. bravepages.. com.. Do you know of a support group that meets regularly? Please email..

    Original link path: /supportgroups.html
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  • Title: Search Page
    Descriptive info: Use the form below to search the J-Pouch site.. This engine searches the j-pouch site only.. The Discussion board has it's own search engine.. Text to Search for:.. Boolean:.. AND.. OR.. Case.. Insensitive.. Sensitive.. Return to J-Pouch Group Home page..

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  • Title: About this site
    Descriptive info: Founder, Creative Director Web Master.. William J.. Johnson.. johnsonwj@j-pouch.. Editor.. hurdl@j-pouch.. Forum moderator and Chat director.. David Hirschhorn.. Advisory Group.. Julius Deren, MD.. Gary Lichtenstein, MD.. Moreye Nusbaum, MD.. Margaret Oteri.. Rolondo Rolandelli.. John Rombeau, MD.. Grace Williams, RNC, ET.. Jan Dollar, R.. N.. CCRN.. General Disclaimer.. Materials presented on these pages are copyrighted by William Johnson and Linda B Hurd.. Except as superseded in individual documents found here, these materials may not be sold or redistributed for profit in any way without express (not email) written permission of the authors.. This includes, but is not limited  ...   of data relating to individual patients and visitors to the J-Pouch Group Web site, including their identity, is respected by this Web site.. The J-Pouch Group Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.. CCFA.. The Crohn's Colitis Foundation of America,.. Philadelphia, Delaware Valley chapter, is located at.. 521 Bustleton Pike, Feasterville, PA, 19053.. Tel: 215-396-9100.. National CCFA headquarters are at,.. 396 Park Avenue South, 17th floor.. New York, New York 10016-8804.. Tel: 212-685-3440 800-343-3637..

    Original link path: /about.html
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    Archived pages: 93