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  • Title: IACFSME > Home
    Descriptive info: .. Login.. Home.. Membership.. Organization.. Conferences.. Journal.. Education/Bulletin.. Links.. Donations.. Contact Us.. Welcome to the website of the International Association for CFS/ME.. IACFS/ME.. BOARD OF DIRECTORS.. PRESIDENT.. Fred Friedberg, PhD.. Stony Brook University.. Stony Brook, NY.. VICE PRESIDENT.. Staci R.. Stevens, MA.. Workwell Foundation.. Ripon, CA.. TREASURER.. Kenneth Friedman, PhD.. Castleton State College.. Castleton, VT.. SECRETARY.. Rosamund Vallings,.. M.. B.. , B.. S.. Papakura, New Zealand.. Lily Chu, M.. D.. , M.. Burlingame, CA.. Dennis Mangan, PhD.. Santa Rosa, CA.. 11th IACFS/ME Biennial International Research and Clinical Conference.. Translating Science into Clinical Care.. The IACFS/ME announces our 11th Biennial International Research and Clinical Conference to be held in San Francisco, California, USA, March 20-23, 2014.. The conference will be held at the Parc 55 Wyndham Hotel.. Integrative conference themes will focus on fatigue, post-exertional malaise, pain, sleep, pediatrics, cognition, and brain function in CFS/ME and Fibromyalgia.. Research and clinical topics will also encompass fatigue in diseases including cancer, autoimmune diseases, multiple sclerosis, pain conditions, mood disorders, and circulatory diseases.. In addition, studies on fatigue in sleep, aging, exercise and sport, and occupations will be welcomed.. Different sessions will address advances in assessment and treatment (from biological to behavioral) as well as new developments in virology, immunology, and neuroendocrinology.. We also anticipate new topics such as mentoring/career development, clinical fatigue education in medical schools and public health policy with respect to fatigue.. Attendees to IACFS/ME conferences are primarily biomedical and behavioral professionals, including clinicians, researchers, and educators.. It is anticipated that this event will be accredited for continuing medical education for Category 1 CME (physicians), CNE for nurses, and CPE for pharmacists.. There will also be a separate one day conference on March 20th specifically for patients (fees apply).. Patients may also attend the main conference on March 21-23rd for an additional fee.. There will be many exciting exhibits and poster presentations of interest to health professionals, researchers and patients.. If you would like to be put on our mailing list for future conference developments (call for abstracts, registration, etc.. ), please provide your email address.. Your contact information will be kept confidential and will not be shared or sold to third parties without your express permission.. Receive conference updates?.. Donate to the IACFS/ME 2014 Conference fund.. ME/CFS survey presented at US Food and Drug Administration Drug Development Workshop.. Date: April 25-26, 2013.. Board member Dr.. Lily Chu and Dr.. Leonard Jason, along with his research team, recently designed an online survey to answer questions about ME and CFS symptoms, impact on daily life, and patient perspectives on treatment posed by the US Food and Drug Administration (FDA).. By mid-April, they had received over 1,000 responses nationally and internationally.. On April 26, some results from 360-470 US respondents were presented during panels #2 and #4 of the Workshop.. You can watch the meeting.. here.. Further results are summarized in.. Attachment #1.. and.. Attachment #2.. For those who have not taken the survey and would still like to participate, please click on this.. link.. They will continue to collect surveys until MAY 10.. All survey responses will be analyzed and presented in a final document to be submitted in August to the FDA's federal docket.. They may also try to publish the results in a scientific journal.. Dr.. Chu and Dr.. Jason would like to thank everyone who took the time and energy to participate in this survey.. Inaugural Issue of.. Fatigue: Biomedicine, Health and Behavior.. : Now Online!.. Date: 1/28/2013.. Dear Members and Colleagues,.. We are excited to announce that the first issue of our new peer review journal.. , Fatigue: Biomedicine, Health, and Behavior.. published by Routledge/Taylor and Francis is now available online.. This is a special free access double issue.. Subsequent issues will be available by login to full members of IACFS/ME.. Also, a print version can be ordered.. For further information on Membership and journal options:.. http://www.. iacfsme.. org/MembershipOptions/tabid/211/Default.. aspx.. Among the seven papers in this first issue, we have a review article on envelope theory by award-winning CFS/ME researcher Leonard Jason.. Also the new issue highlights a controlled study from the University of California research team headed by renowned sleep expert Sonia Ancoli-Israel.. The topic: chronic fatigue and sleep disruption in cancer patients with implications for light therapy treatment.. To access.. Fatigue.. online.. ,.. click on:.. tandfonline.. com/loi/rftg20.. Thank you for your support!.. Fred.. President.. www.. org.. Practice Primer for Chronic Fatigue Syndrome Now Available in User-Friendly Print Version.. Date: 9/19/2012.. Dear Members, Colleagues, and All Who are interested in Chronic Fatigue Syndrome (CFS):.. We are happy to announce that our 2012.. CFS/ME Primer for Clinical Practitioners.. is now available in a user-friendly, professionally prepared print version.. This newly released 42-page spiral bound booklet is easy-to-use, particularly for quick referencing of specific sections that may be of interest.. The.. goal of the Primer is to provide the information necessary for clinicians to understand, diagnose, and manage the symptoms of ME/CFS.. The new print version will be mailed directly to your door.. It may be ordered through.. bookpatch.. com.. for $15.. New IACFS/ME Fatigue Journal.. Date: 6/2/2012.. On behalf of the board of directors  ...   speaker at the IACFS/ME Research and Clinical Conference in Ottawa, Sept.. 22-25, 2011.. He will share the podium with prominent CFS/ME researchers Dr.. Leonard Jason and Dr.. Elizabeth Unger in a 90-minute, case-definitions symposium that will allow plenty of time for Q and A about the new criteria.. I expect this to be a lively session.. I think that discussion, debate, and input from practitioners and scientists are now in order regarding this newly defined ME.. June 6, 2011.. DSM-5 Somatic Symptoms Disorders and CFS/ME.. Dear Members and Colleagues:.. I have submitted the comments below to the DSM-5 Work Group on Somatic Symptom Disorders.. We are very concerned about the proposed new diagnosis, Complex Somatic Symptom Disorder, and its potential influence on physicians who see patients with CFS/ME.. Thank you.. To the DSM-5 Somatic Symptoms Disorders Work Group:.. On behalf of the board of directors and the membership of the International Association for Chronic Fatigue Syndrome (IACFS/ME), I would like to express my deep concern about the proposed new category of Complex Somatic Symptom Disorder (CSSD) in DSM-5 scheduled for release in 2013.. The Work Group’s well-reasoned points about DSM-IV somatoform disorders -- that they are little used, confusing, and pejorative – do call for a re-evaluation.. The question is: What should replace them? The new inclusive CSSD category attempts to offer a simplified and more inclusive diagnosis that may be more user-friendly to physicians and other health practitioners.. Our major concern is that the logic behind the new CSSD category is not informed by empirical data that directly examines the utility of this diagnosis in medical practice.. As stated by your Work Group: “A key issue is whether the guidelines for CSSD describe a valid construct and can be used reliably.. …Predictive validity of most of the diagnostic proposals has not yet been investigated.. ”.. Given the absence of scientific validation of the CSSD diagnosis, the potential for unintended consequences is a serious concern.. One such consequence is the possibility of over-diagnosis that may selectively affect patients with illnesses that are already not well understood such as CFS/ME.. If the treating practitioner is skeptical about the severity or even existence of CFS/ME, then the new criteria can be used to diagnose CSSD without reference to an underlying illness.. For instance, the CSSD criteria of (2) Disproportionate and persistent concerns about the medical seriousness of one's symptoms.. and (3) Excessive time and energy devoted to these symptoms or health concerns, would allow practitioners skeptical of CFS/ME to diagnosis the illness as an Axis I psychiatric disorder.. This new psychological diagnosis may then narrow the physician’s focus and reduce the possibility of more effective management of the CFS/ME illness.. Furthermore, the CSSD diagnosis may result in additional stigma for already marginalized patients with CFS/ME.. Over-diagnosis with CSSD may also arise from the broad generality of the new criteria and the absence of clear thresholds for patients to meet the criteria.. As with somatization/somatoform disorders, when different criteria are used population prevalence varies from less than 1% for somatization disorder to an astonishing 79% for undifferentiated somatoform disorder (cited from Work Group online document).. Arguably, the generality of the criteria for both undifferentiated somatoform disorder and CSSD suggests that CSSD may become a much more common (and potentially misapplied) diagnosis than the somatic symptom disorders that it replaces.. Finally, the CSSD diagnosis will not inform the clinician of CFS/ME-specific issues such as adverse reactions to treatment that are more likely in this hypersensitive population.. By contrast, the CFS/ME diagnosis is useful for an array of illness-related concerns that will assist the clinician in providing care for these medically under-served patients.. Given the above considerations, we ask that the CSSD diagnosis be omitted from DSM-5.. Only when the proper validation studies are done that consider vulnerable populations such as CFS/ME can we know if the use of the CSSD diagnosis has clinical value.. In its current form, we believe that the new diagnosis will do more harm than good.. Fred Friedberg.. February 24, 2011.. IACFS/ME Statement on the PACE Trial:.. The Issue of Illness "Reversal".. The much publicized UK-based PACE trial (.. Lancet.. , Feb.. 18.. th;.. thelancet.. com/journals/lancet/article/PIIS0140-6736(11)60096-2/fulltext.. ) reported positive outcomes for patients with CFS/ME who were treated with cognitive-behavior therapy (CBT) or graded exercise therapy (GET) in comparison to a standard medical care condition or an adaptive pacing condition.. The adaptive pacing condition was intended to help patients adjust their activity levels according to their available energy (based on envelope theory).. The findings were similar to previous CBT and GET studies in CFS.. This trial was unique in incorporating a pacing condition and recruiting a very large sample.. That said, we have concerns about how the trial was reported.. Click here for full text of statement.. October 13, 2010.. CDC/CFS Program Leadership Criticized in Public Testimony Presented to the CFS Advisory Committee.. July 30, 2010.. Science and the Hold on XMRV Studies.. May 10, 2010.. Testimony to CFS Advisory Committee.. March 25, 2010.. DSM-5 May Include CFS as a Psychiatric Diagnosis.. October 29, 2009.. To the CFS/ME Community:.. Copyright 2013 by IACFS/ME.. Terms Of Use.. Privacy Statement..

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  • Title: IACFSME > Home
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  • Title: IACFSME > Membership Options
    Descriptive info: Membership Options.. Professional Memberships (Regular, Lifetime and Honorary).. Professional Membership is for any researcher, clinician or health care professional interested in CFS activities.. Professionals involved with legal issues or those involved with not-for-profit or government agencies related to CFS are also welcome.. All professional members are entitled to vote on all organizational matters that must be approved by the board of directors.. For those applying to be a member, a membership committee will review each applicant and make a recommendation to the Board of Directors.. The annual fee for Regular Professional Membership is $125 with a 2 year Regular Professional Membership fee of $195.. All professional members are encouraged to join or renew at the Lifetime level.. Professional members will be listed on the IACFS/ME website with accessibility only to other IACFS/ME members unless they specifically opt not to be listed.. Honorary professional members have been recognized for their special contributions to the battle against CFS by a two-thirds majority vote by the board of directors.. No fee is required of honorary professional members.. Benefits.. · Login access to online peer review quarterly journal:.. · IACFS/ME Newsletter (3x a year).. · Discounted fees to our international biennial research and clinical conference.. Associate Membership.. This category is for students,  ...   and individual sponsors.. Supporting members can contribute at the Standard ($200), Bronze ($500), Silver ($1,000), Gold ($2,500) or Platinum ($5,000) levels.. Supporting members can also make donations in any amount to the Rudy Perpich Memorial Fund, the Junior Investigator Award or the IACFS/ME General Fund.. Supporting members have a non-voting status with respect to all organizational matters that must be approved by the board of directors and the Professional Membership.. Supporting members will be listed on the IACFS/ME website with accessibility only to other IACFS/ME members unless they specifically opt not to be listed.. There will be a separate listing on the website for support groups.. · Login access to online peer review quarterly journal: Fatigue: Biomedicine, Health and Behavior.. Print Subscriptions.. A print version of our.. new subscription-based peer review journal,.. Fatigue: Biomedicine, Health, and Behavior.. , published quarterly by Routledge/Taylor and Francis, is available as a paid subscription.. See the Membership Form for details.. How to Become a Member.. Online Membership/Donor Form.. PDF.. Membership Form.. To download a membership application and renewal form, click the icon to the left.. This form also is used for donating to the IACFS/ME.. (To view or print this form requires Adobe Acrobat Reader 4.. 0 or higher.. Obtain Adobe Acrobat Reader..

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  • Title: IACFSME > Home
    Descriptive info: AGREEMENT BETWEEN USER AND IACFSME.. The IACFSME Web Site is comprised of various Web pages operated by IACFSME.. The IACFSME Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices contained herein.. Your use of the IACFSME Web Site constitutes your agreement to all such terms, conditions, and notices.. MODIFICATION OF THESE TERMS OF USE.. IACFSME reserves the right to change the terms, conditions, and notices under which the IACFSME Web Site is offered, including but not limited to the charges associated with the use of the IACFSME Web Site.. LINKS TO THIRD PARTY SITES.. The IACFSME Web Site may contain links to other Web Sites ("Linked Sites").. The Linked Sites are not under the control of IACFSME and IACFSME is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked Site, or any changes or updates to a Linked Site.. IACFSME is not responsible for webcasting or any other form of transmission received from any Linked Site.. IACFSME is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by IACFSME of the site or any association with its operators.. NO UNLAWFUL OR PROHIBITED USE.. As a condition of your use of the IACFSME Web Site, you warrant to IACFSME that you will not use the IACFSME Web Site for any purpose that is unlawful or prohibited by these terms, conditions, and notices.. You may not use the IACFSME Web Site in any manner which could damage, disable, overburden, or impair the IACFSME Web Site or interfere with any other party's use and enjoyment of the IACFSME Web Site.. You may not obtain or attempt to obtain any materials or information through any means not intentionally made available or provided for through the IACFSME Web Sites.. USE OF COMMUNICATION SERVICES.. The IACFSME Web Site may contain bulletin board services, chat areas, news groups, forums, communities, personal web pages, calendars, and/or other message or communication facilities designed to enable you to communicate with the public at large or with a group (collectively, "Communication Services"), you agree to use the Communication Services only to post, send and receive messages and material that are proper and related to the particular Communication Service.. By way of example, and not as a limitation, you agree that when using a Communication Service, you will not:.. Defame, abuse, harass, stalk, threaten or otherwise violate the legal rights (such as rights of privacy and publicity) of others.. Publish, post, upload, distribute or disseminate any inappropriate, profane, defamatory, infringing, obscene, indecent or unlawful topic, name, material or information.. Upload files that contain software or other material protected by intellectual property laws (or by rights of privacy of publicity) unless you own or control the rights thereto or have received all necessary consents.. Upload files that contain viruses, corrupted files, or any other similar software or programs that may damage the operation of another's computer.. Advertise or offer to sell or buy any goods or services for any business purpose, unless such Communication Service specifically allows such messages.. Conduct or forward surveys, contests, pyramid schemes or chain letters.. Download any file posted by another user of a Communication Service that you know, or reasonably should know, cannot be legally distributed in such manner.. Falsify or delete any author attributions, legal or other proper notices or proprietary designations or labels of the origin or source of software or other material contained in a file that is uploaded.. Restrict or inhibit any other user from using and enjoying the Communication Services.. Violate any code of conduct or other guidelines which may be applicable for any particular Communication Service.. Harvest or otherwise collect information about others, including e-mail addresses, without their consent.. Violate any applicable laws or regulations.. IACFSME has no obligation to monitor the Communication Services.. However, IACFSME reserves the right to review materials posted to a Communication Service and to remove any materials in its sole discretion.. IACFSME reserves the right to terminate your access to any or all of the Communication Services at any time without notice for any reason whatsoever.. IACFSME reserves the right at all times to disclose any information as necessary to satisfy any applicable law, regulation, legal process or governmental request, or to edit, refuse to post or to remove any information or materials, in whole or in part, in IACFSME's sole discretion.. Always use caution when giving out any personally identifying information about yourself or your children in any Communication Service.. IACFSME does not control or endorse the content, messages or information found in any Communication Service and, therefore, IACFSME  ...   ALL SUCH INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS ARE PROVIDED "AS IS" WITHOUT WARRANTY OR CONDITION OF ANY KIND.. IACFSME AND/OR ITS SUPPLIERS HEREBY DISCLAIM ALL WARRANTIES AND CONDITIONS WITH REGARD TO THIS INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS, INCLUDING ALL IMPLIED WARRANTIES OR CONDITIONS OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, TITLE AND NON-INFRINGEMENT.. TO THE MAXIMUM EXTENT PERMITTED BY APPLICABLE LAW, IN NO EVENT SHALL IACFSME AND/OR ITS SUPPLIERS BE LIABLE FOR ANY DIRECT, INDIRECT, PUNITIVE, INCIDENTAL, SPECIAL, CONSEQUENTIAL DAMAGES OR ANY DAMAGES WHATSOEVER INCLUDING, WITHOUT LIMITATION, DAMAGES FOR LOSS OF USE, DATA OR PROFITS, ARISING OUT OF OR IN ANY WAY CONNECTED WITH THE USE OR PERFORMANCE OF THE IACFSME WEB SITE, WITH THE DELAY OR INABILITY TO USE THE IACFSME WEB SITE OR RELATED SERVICES, THE PROVISION OF OR FAILURE TO PROVIDE SERVICES, OR FOR ANY INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS OBTAINED THROUGH THE IACFSME WEB SITE, OR OTHERWISE ARISING OUT OF THE USE OF THE IACFSME WEB SITE, WHETHER BASED ON CONTRACT, TORT, NEGLIGENCE, STRICT LIABILITY OR OTHERWISE, EVEN IF IACFSME OR ANY OF ITS SUPPLIERS HAS BEEN ADVISED OF THE POSSIBILITY OF DAMAGES.. BECAUSE SOME STATES/JURISDICTIONS DO NOT ALLOW THE EXCLUSION OR LIMITATION OF LIABILITY FOR CONSEQUENTIAL OR INCIDENTAL DAMAGES, THE ABOVE LIMITATION MAY NOT APPLY TO YOU.. IF YOU ARE DISSATISFIED WITH ANY PORTION OF THE IACFSME WEB SITE, OR WITH ANY OF THESE TERMS OF USE, YOUR SOLE AND EXCLUSIVE REMEDY IS TO DISCONTINUE USING THE IACFSME WEB SITE.. SERVICE CONTACT : admin@iacfsme.. TERMINATION/ACCESS RESTRICTION.. IACFSME reserves the right, in its sole discretion, to terminate your access to the IACFSME Web Site and the related services or any portion thereof at any time, without notice.. GENERAL To the maximum extent permitted by law, this agreement is governed by the laws of the State of Washington, U.. A.. and you hereby consent to the exclusive jurisdiction and venue of courts in King County, Washington, U.. in all disputes arising out of or relating to the use of the IACFSME Web Site.. Use of the IACFSME Web Site is unauthorized in any jurisdiction that does not give effect to all provisions of these terms and conditions, including without limitation this paragraph.. You agree that no joint venture, partnership, employment, or agency relationship exists between you and IACFSME as a result of this agreement or use of the IACFSME Web Site.. IACFSME's performance of this agreement is subject to existing laws and legal process, and nothing contained in this agreement is in derogation of IACFSME's right to comply with governmental, court and law enforcement requests or requirements relating to your use of the IACFSME Web Site or information provided to or gathered by IACFSME with respect to such use.. If any part of this agreement is determined to be invalid or unenforceable pursuant to applicable law including, but not limited to, the warranty disclaimers and liability limitations set forth above, then the invalid or unenforceable provision will be deemed superseded by a valid, enforceable provision that most closely matches the intent of the original provision and the remainder of the agreement shall continue in effect.. Unless otherwise specified herein, this agreement constitutes the entire agreement between the user and IACFSME with respect to the IACFSME Web Site and it supersedes all prior or contemporaneous communications and proposals, whether electronic, oral or written, between the user and IACFSME with respect to the IACFSME Web Site.. A printed version of this agreement and of any notice given in electronic form shall be admissible in judicial or administrative proceedings based upon or relating to this agreement to the same extent an d subject to the same conditions as other business documents and records originally generated and maintained in printed form.. It is the express wish to the parties that this agreement and all related documents be drawn up in English.. COPYRIGHT AND TRADEMARK NOTICES:.. All contents of the IACFSME Web Site are: Copyright 2013 by IACFS/ME and/or its suppliers.. All rights reserved.. TRADEMARKS.. The names of actual companies and products mentioned herein may be the trademarks of their respective owners.. The example companies, organizations, products, people and events depicted herein are fictitious.. No association with any real company, organization, product, person, or event is intended or should be inferred.. Any rights not expressly granted herein are reserved.. NOTICES AND PROCEDURE FOR MAKING CLAIMS OF COPYRIGHT INFRINGEMENT.. Pursuant to Title 17, United States Code, Section 512(c)(2), notifications of claimed copyright infringement under United States copyright law should be sent to Service Provider's Designated Agent.. ALL INQUIRIES NOT RELEVANT TO THE FOLLOWING PROCEDURE WILL RECEIVE NO RESPONSE.. See Notice and Procedure for Making Claims of Copyright Infringement..

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  • Title: IACFSME > Home
    Descriptive info: IACFSME is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience.. This Statement of Privacy applies to the IACFSME Web site and governs data collection and usage.. By using the IACFSME website, you consent to the data practices described in this statement.. Collection of your Personal Information.. IACFSME collects personally identifiable information, such as your e-mail address, name, home or work address or telephone number.. IACFSME also collects anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences, interests and favorites.. There is also information about your computer hardware and software that is automatically collected by IACFSME.. This information can include: your IP address, browser type, domain names, access times and referring Web site addresses.. This information is used by IACFSME for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the IACFSME Web site.. Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through IACFSME public message boards, this information may be collected and used by others.. Note: IACFSME does not read any of your private online communications.. IACFSME encourages you to review the privacy statements of Web sites you choose to link to from IACFSME so that you can understand how those Web sites collect, use and share your information.. IACFSME is not responsible for the privacy statements or other content on Web sites outside of the IACFSME and IACFSME family of Web sites.. Use of your Personal Information.. IACFSME collects and uses your personal information to operate the IACFSME Web site and deliver the services you have requested.. IACFSME also uses your personally identifiable information to inform you of other products or services available from IACFSME and its affiliates.. IACFSME may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.. IACFSME does not sell, rent or lease its customer lists to third parties.. IACFSME may, from time to time, contact you on behalf of external business partners about a particular offering that may be of interest to you.. In those cases, your unique personally identifiable information (e-mail, name, address, telephone number) is not transferred to the third party.. In  ...   the personal safety of users of IACFSME, or the public.. Use of Cookies.. The IACFSME Web site use "cookies" to help you personalize your online experience.. A cookie is a text file that is placed on your hard disk by a Web page server.. Cookies cannot be used to run programs or deliver viruses to your computer.. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.. One of the primary purposes of cookies is to provide a convenience feature to save you time.. The purpose of a cookie is to tell the Web server that you have returned to a specific page.. For example, if you personalize IACFSME pages, or register with IACFSME site or services, a cookie helps IACFSME to recall your specific information on subsequent visits.. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on.. When you return to the same IACFSME Web site, the information you previously provided can be retrieved, so you can easily use the IACFSME features that you customized.. You have the ability to accept or decline cookies.. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer.. If you choose to decline cookies, you may not be able to fully experience the interactive features of the IACFSME services or Web sites you visit.. Security of your Personal Information.. IACFSME secures your personal information from unauthorized access, use or disclosure.. IACFSME secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure.. When personal information (such as a credit card number) is transmitted to other Web sites, it is protected through the use of encryption, such as the Secure Socket Layer (SSL) protocol.. Changes to this Statement.. IACFSME will occasionally update this Statement of Privacy to reflect company and customer feedback.. IACFSME encourages you to periodically review this Statement to be informed of how IACFSME is protecting your information.. Contact Information.. IACFSME welcomes your comments regarding this Statement of Privacy.. If you believe that IACFSME has not adhered to this Statement, please contact IACFSME at.. admin@iacfsme.. We will use commercially reasonable efforts to promptly determine and remedy the problem..

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  • Title: IACFSME > Home
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  • Title: IACFSME > Organization Information
    Descriptive info: Presidential Letter.. Mission Statement.. Member Directory.. Leadership of the IACFS/ME.. Committees of the IACFS/ME.. IACFS/ME Brochure.. History of the IACFS/ME.. Former IACFS/ME Awardees.. I’d like to extend my sincere appreciation to all attendees and presenters at our 2011 biennial international conference in Ottawa, Ontario, Canada (Sept.. 22‐25).. We had a strong turnout for our general scientific and clinical sessions as well as our professional workshops.. Our patient conference was also well‐received.. A big thank you goes to Lydia Neilson the CEO of the National ME/FM Action Network of Canada for her substantial work to make the conference a success.. The Ottawa location (and the warm autumn weather) were  ...   Consensus Criteria).. Also we paid particular attention to your feedback about the meeting.. Although we increased the number of clinical workshops and presentations in Ottawa, feedback indicated that attendees wanted more clinical information to help their patients.. So this will be actively considered as we plan our next conference.. We invite your input about the location and content of our next biennial meeting.. We are particularly interested in conference venues that offer some level of supportive funding or other financial incentives.. Also, if you would like to become more actively involved in one of our committees (fundraising, journal, newsletter, membership, international issues), please contact me (.. Friedberg@sbumed.. )..

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  • Title: IACFSME > Conferences
    Descriptive info: 2014 San Francisco.. 2011 Ottawa.. Conference Letter.. Post Conference Summary.. 2010 New Jersey-Patient.. 2009 Reno.. 2008 Okinawa, Japan.. 2008 Baltimore.. Summary of the Viruses in Chronic Fatigue Syndrome Post-Viral Fatigue Conference.. Videos of the Viruses in Chronic Fatigue Syndrome Post-Viral Fatigue Conference.. Summary of the 6th International  ...   HHV-6 7.. Abstract Books.. 2007 Fort Lauderdale.. Eighth International Conference Agenda - Professional.. Eighth International Conference Agenda - Patient.. Ft.. Lauderdale Conference DVD.. 2007 Oslo, Norway.. 2004 Madison.. Conference Agenda.. 2003 Chicago.. 2003 Chantilly.. 2001 Bloomington.. 2001 Seattle.. 1998 Boston.. 1996 San Francisco.. 1994 Ft.. Lauderdale.. 1992 Albany..

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  • Title: IACFSME > Journal
    Descriptive info: About the Journal Access.. The IACFS/ME sponsors the PubMed-listed peer review journal: Fatigue: Biomedicine, Health, and Behavior.. com/loi/rftg20#.. Uqm0MNiA3IV.. Professional membership.. includes an online subscription to the journal via the login below.. Account Login.. Email Address:.. Password:.. Keep me logged in for 14 days.. Forgot Password ?..

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  • Title: IACFSME > Educational Services
    Descriptive info: EDUCATIONAL SERVICES and CLINICAL MANAGEMENT.. Publications.. Bulletin.. Newsletter.. Journal of CFS.. Case Definitions.. Adult and Child Case Definitions.. Scientific References.. National Library of Medicine.. CDC.. CFS Research News (CAA).. Medline Plus.. CFS Advisory Committee.. DHHS CFS Advisory Committee.. Clinical Management.. ME/CFS Management.. Quick Start Guide.. Medscape  ...   Clinical Trials.. Research Grants.. Scholarships.. Questionnaires.. Diagnosis in Adults.. Pediatric Diagnosis.. Controversial Issues.. ME/CFS Name Change.. Why the Name of an Illness is Important.. ME/CFS Myths.. Events Calendar.. August 2013 Survey of US Residents with ME/CFS.. FDA - August Final Report.. FDA - Survey Results April 2013..

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  • Title: IACFSME > Links
    Descriptive info: Not-for-Profit Organizations (United States).. American Lyme Disease Foundation.. CFIDS Association of America.. CFIDS Report.. CFS Knowledge Center.. Co-Cure ME/CFS and Fibromyalgia.. HHV-6 Foundation.. Institute for Molecular Medicine.. National Alliance for Myalgic Encephalomyelitis.. National CFIDS Foundation.. National Dysautonomia Research Foundation.. National Fibromyalgia Association.. National Fibromyalgia Research Association.. Pain Research Center at University of Utah.. PANDORA Org - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy.. Organization for Fatigue and Fibromyalgia Education and Research.. Not-for-Profit Organizations (U.. K.. Action for ME.. Association of Young People with ME.. Blue Ribbon for the Awareness of ME.. CFS Research Foundation.. Falcon Academy.. Invest In ME.. Irish ME Trust.. ME Association.. ME Northeast.. ME Research UK.. National ME Centre.. Network ME.. A Place For ME.. RiME — Research into Myalgic Encephalomyelitis.. Search ME.. 25% ME Group.. Welsh Association of ME and CFS Support.. Young Action Online / Tymes Trust.. More information on each can be found on the linked websites or on.. meresearch.. uk/information/links/charityuk.. html.. Not-for-Profit Organizations (Canada and Australia and New Zealand).. Association quebecoise de l’encéphalomyélite myalgique.. FM-CFS Canada.. ME/CFS Association of Australia Limited.. ME/CFS Australia (Vic, Tas, NT).. ME/CFS Society (SA) Inc.. (Australia, New Zealand, U.. National ME/FM Action Network (Canada).. New Zealand ME Society.. Not-for-Profit Organizations (International).. C.. F.. Associazione Italiana (Italy).. CFS Italia  ...   Resources.. Department of Health and Human Services, Center for Disease Control and Prevention (CDC).. NIH Roadmap for Medical Research.. Trans-NIH Working Group for Research on CFS.. Trans-NIH Working Group Report on Neuro-immune Mechanisms and CFS.. NIH Guide to Healthy Sleep (National Heart, Lung and Blood Institute).. United States Department of Health and Human Services,.. hronic Fatigue Syndrome Advisory Committee (transcripts of meetings).. National Institute for Allergy and Infectious Disease.. Disability.. Americans with Disabilities Act.. US Department of Justice Guide to Disability Rights Laws.. Social Security Administration Ruling on CFS Disability.. SSA Disability Report Form Guide.. Martindale Hubbell Lawyer Locator.. Massachusetts CFIDS Association Disability Handbook.. The Disability Benefits Information Website (United States and Canada).. Gulf War Illnesses.. Department of Veterans Affairs (GWI).. Department of Defense (GulfLINK).. Support Groups.. CFS Knowledge Center list.. Disclaimer.. The information and opinions contained in the links accessed from this website are intended for educational purposes and do not necessarily reflect the views of the International Association for Chronic Fatigue Syndrome.. The board of directors of the IACFS has not reviewed the content of these web links and does not endorse or accept responsibility for the information contained therein.. Only a physician familiar with a patient's individual medical history can make medical judgments and give that patient personal medical advice..

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