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    Archived pages: 62 . Archive date: 2013-05.

  • Title: Faces
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  • Title: Welcome
    Descriptive info: FACES: The National.. Craniofacial Association.. One in 650 babies is born with some type of disorder affecting.. the face, skull, and/or neck.. Parents of these children need somewhere to.. turn for valuable information and words of reassurance.. FACES Can Help.. For over 42 years, FACES: The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.. Ways that FACES can be of assistance.. Information on 28 Specific.. Craniofacial Disorders.. Each page includes general information on the disorder, including a list of helpful materials relating to the disorder.. Networking and Resources.. Contact with another family sharing a similar  ...   it, is a message of great comfort.. Other Helpful Services.. FACES provides resource files of specialized.. craniofacial centers.. and other relevant resources; financial aid to those needing to travel away from home for medical assistance; quarterly newsletters providing human interest stories as well as the latest research and information on craniofacial disorders.. There is never a charge for any of our services.. FACES.. P.. O.. Box.. 11082.. Chattanooga, TN 37401.. 1-800-3FACES3.. e-mail:.. faces@faces-cranio.. org.. FACES is a member organization of.. and a proud participant in.. HOME.. Mission Statement.. Links.. Financial Issues.. How Can I Help?.. Medical Centers.. Contact FACES.. Last updated on:.. Monday, October 03, 2011 01:29 PM..

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  • Title: There are many ways that you can help FACES!
    Descriptive info: The National.. Craniofacial.. Association.. O.. Box 11082.. * Chattanooga, TN 37401.. 800-.. 332-2373.. There are many ways that you can help FACES!.. Your financial assistance is always needed:.. We welcome your donations that may be sent to our offices located at:.. FACES: The National Craniofacial Association.. Chattanooga, TN 37401.. Contributions to FACES are deductible for income tax purposes under Section 501(c)(3) of the Internal Revenue Code.. depends upon public donations to continue its work.. You can also make a donation using your credit card!.. Making a donation through our.. secure server.. is fast and easy, and when we receive your donation, we will send you an acknowledgement in the mail for tax purposes.. Click on the.. Give Direct.. button to make a donation.. Thank you for your support!.. Adopt-A-Face Program.. This is a wonderful program for individuals, organizations, and businesses to adopt one of our FACES' Clients (those families to whom we provide financial assistance for traveling away from home for their reconstructive surgeries).. The program involves a three-year pledge of $600.. 00 per year and the entire contribution goes to assist the adopted family.. The family is made aware of your contribution on their behalf and we keep you updated on the progress of your adopted child.. You can now donate your cars, trucks, and RVs to directly benefit FACES.. Click.. Here.. to make your vehicle donations.. Thanks you for your support!.. CFC - Combined Federal Campaign.. If you are a Federal employee, FACES is listed as.. #11268.. as a choice for your  ...   option, you can designate FACES; P.. Box 10082, Chattanooga, TN 37401.. FACES is a 501(c)(3) non-profit organization.. Be a part of our FACES Support Network:.. Be a contact for other families.. If you would like to volunteer to be listed as a contact for new parents of babies born with a particular craniofacial disorder, please let us know by calling FACES at 800-332-2373.. Your words of wisdom and experience can be so helpful to other families who are making the unplanned journey down the roads you have already traveled.. Share your story with our Newsletter readers.. FACES quarterly newsletter is mailed to approximately 20,000 homes, hospitals, social workers, businesses, schools, and libraries.. Our readers love to read personal stories of the accomplishments of others.. You may mail your stories and pictures to FACES; P.. Box 11082; Chattanooga, TN 37401.. Share helpful resources you have found.. The number of resources dedicated to helping those with craniofacial disorders is rapidly growing.. Let us know if there has been a resource you have found to be particularly helpful so that we can share these through our web site and newsletter.. We will also be happy to publicize information about resources that you have started yourself in order to assist other families.. Some of the best resources we know of were started by mothers of children with craniofacial problems who were determined to share the information and knowledge that was so hard for them to obtain.. Tuesday, February 08, 2011 04:40 PM.. © Copyright 2006.. All rights reserved..

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  • Title: Mission Statement
    Descriptive info: The National.. STATEMENT OF SERVICES.. FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease.. There is never a charge for any service provided by FACES.. Our service goals address three distinct areas:.. o Client Travel o Public Awareness and Understanding o Information and Support.. Client Travel.. FACES provides financial assistance for expenses incurred while traveling away from home to a craniofacial center for reconstructive surgery and/or evaluation.. This assistance is offered on the basis of financial and medical need and includes transportation, lodging, and food.. Insurance and government medical assistance programs help to pay for surgeries but rarely pay for travel expenses.. FACES does not choose the physicians or medical centers for the clients; that choice is made entirely by the family.. Once a client is approved by FACES, every attempt is made to continue  ...   quarterly newsletter which over 20,000 copies are mailed to client families, supporters, professional groups, and the medical community, FACES has an ever-growing national speaker bureau of clients, client's families, and volunteers who speak to groups about the challenges and needs of those with craniofacial differences.. Information and Support Network.. FACES furnishes information about craniofacial centers and publishes a brochure which further details the scope of our organization.. FACES provides referrals to other available resources and organizations, maintains up-to-date information on specific diseases or birth defects, and assists in getting families in touch with other families who have a child with the same disorder.. By connecting these families, FACES gives them the means to alleviate the emotional isolation that is often felt by patient and family.. By sharing information and providing support, FACES helps to build a framework in which clients and their families can cope.. Last modified on:.. Thursday, February 10, 2011 02:29 PM..

    Original link path: /General.htm
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  • Title: List of Disorders
    Descriptive info: The National Craniofacial Association.. List of Disorders.. FACES provides information and support networks on each of these anomalies.. Apert Syndrome.. Basal Cell Carcinoma Nevoid Syndrome.. (Gorlin Syndrome Basal Cell Nevus Syndrome).. Carpenter Syndrome.. Cleft Lip and Palate.. Cleidocranial Dysplasia.. Craniosynostosis.. Crouzon Syndrome.. Freeman Sheldon Syndrome.. Goldenhar Syndrome.. Hallerman-Streiff Syndrome.. Hemifacial Microsomia.. Hydrocephalus.. Microtia.. Moebius Syndrome.. Nager Syndrome.. Miller Syndrome.. Nasal Encephaloceles.. Neurofibromatosis.. Orbital Hypertelorism.. Parry-Romberg Syndrome.. Pfeiffer Syndrome.. Pierre Robin Sequence.. Saethre-Chotzen Syndrome.. Stickler Syndrome.. Sturge Weber -.. see Vascular Birthmarks.. Treacher Collins Syndrome.. Vascular Birthmarks: Hemangiomas and Vascular Malformations.. Velo-Cardio-Facial.. Friday, October 08, 2010 11:33 AM..

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  • Title: Craniofacial Medical Centers
    Descriptive info: Craniofacial Medical Centers.. FACES makes no referrals to specific craniofacial reconstructive surgeons; however, as one of our services to you, we are providing this list of teams across the country.. This list is arranged by state, with those in Canada being at the end of the list.. New centers are being established every year; therefore, this list does not include every one.. You may wish to contact the International Society of Craniomaxillofacial Surgeons and The American Society of Plastic Surgeons for additional centers at.. http://www.. plasticsurgery.. or (888) 475-2784.. A.. |.. C.. D.. F.. G.. I.. L.. M.. N.. S.. T.. V.. W.. Canada.. Alabama.. UAB Cleft Lip/Palate Craniofacial Center.. Division of Plastic Surgery.. 1600 7th Avenue; ACC 322.. Birmingham, AL 35233.. Directors: John H.. Grant III, M.. D.. , Peter D.. Ray, MD.. Coordinator:.. Jennifer Bowen, RN.. 800-226-4770 (ask for Plastic Surgery).. 205-939-9369.. Arizona.. St.. Joseph's Hospital and Medical Center.. Barrow Children's Cleft and Craniofacial Center.. 350 W.. Thomas Road, Suite 320.. Phoenix, AZ 85013.. Director: Stephen Paul Beals, MD.. 602-406-3223.. Arkansas.. Arkansas Children's Hospital.. 1 Children's Way, Mail slot 668.. Little Rock, Arkansas 72202-3591.. Vascular Anomalies Center.. 501-364-7546.. Cleft Lip and Palate Clinic.. 501-364-1658.. Center for Craniofacial Anomalies.. 501-364-5775.. California.. Children's Hospital of Los Angeles.. Craniofacial and Cleft Center.. 4650 Sunset Blvd.. / Mail Stop 96.. Los Angeles, CA 90027.. Director:.. Mark Urata, MD,DDS.. Andre Panossian, MD, Jeffrey Hammoudeh, MD,DDS,.. Sheryl Lewin, MD, William Magee, MD,DDS.. Coordinator: Jamie Rugel.. 323-669-4544.. Back to top.. UCLA Craniofacial Clinic.. 10833 Le Conte Avenue.. 200 UCLA Medical Plaza, Suite 465.. Los Angeles, CA 90095-6960.. Dr.. Henry Kawamoto, Jr.. ; Dr.. James Bradley; Dr.. Reza Jarrahy.. Coordinator: Leslie Davila.. 310-825-5904.. 866-233-2176.. University of California - San Francisco.. 513 Parnassus Avenue, Suite 747.. San Francisco, CA 94143-0442.. Directors: Karen Vargervik, DDS.. William Hoffman, MD.. Coordinator: Anne Boekelheide, RN, PNP.. 415-476-2271.. Lucille Packard Children's Hospital at Stanford U.. Craniofacial Anomalies Center.. 730 Welch Road.. Palo Alto, CA 94304.. Director: H.. Peter Lorenz, MD.. Elena M.. Hopkins.. RN, MS, PNP.. 650-497-8654.. The Hemangioma and Vascular Birthmark Center of Los Angeles.. 425 N.. Bedford Drive, Suite 203.. Beverly Hills, CA 90210.. Gregory Levitin, MD, FACS.. 917-699-3339.. Burt Brent (ears only).. 2995 Woodside Rd.. , ste.. 300.. Woodside, CA 94062.. 650-851-5300.. Connecticut.. Connecticut Children's Medical Center.. 282 Washington Street.. Hartford, CT 06106.. Directors: Charles L.. Castiglione, MD and Paul Kanev, MD.. Kerri Langevin.. APRN.. 860-545-9360.. Yale Craniofacial Center.. 800 Howard Ave, 2nd Floor.. New Haven, CT 06520.. John A.. Persing, MD.. Email:.. john.. persing@yale.. edu.. 203-737-2049 or 203-785-2571.. District of Columbia.. Jeffrey C.. Posnick, DMD, MD, FRCS(C), FACS.. Clinical Professor of Plastic Surgery, Otolaryngology/Head Neck Surgery, Oral and Maxillofacial Surgery and Pediatrics.. Georgetown University, Washington, DC.. Posnick.. 5530 Wisconsin Avenue, Suite 1250.. Chevy Chase, MD 20815.. Office: 301-986-9475.. Fax: 301-986-1974.. Florida.. Miami Children's Hospital.. 3100 SW 62nd Avenue.. Miami, FL 33155.. Director: Dr.. Anthony Wolfe.. craniofacialteam@mch.. com.. 305-662-8237.. 800-662-8502.. Joe DiMaggio Craniofacial Program.. 1000 Joe DiMaggio Drive.. Hollywood, FL 33028.. Medical Director: Eric J.. Stelnicki, MD, 954-983-1899.. Team Leader: Dr.. Eric Cameron, 954-986-6314.. Children's Craniofacial Center.. Joseph's Children's Hospital of Tampa.. 3001.. Martin Luther King Jr.. Blvd.. Tampa, FL 33607-6307.. Telephone: (813) 870-4565.. Fax: (813) 554-8189.. Pat Ricalde, DDS, MD.. Coordinators:.. Jovanna Nogues, MS CCC/SLP, email:.. jovanna.. nogues@baycare.. Andrea Godwin, MA CCC/SLP, email:.. andrea.. godwin@baycare.. Tampa Bay Craniofacial Center.. Plastic Reconstructive Surgery.. 205 W.. Martin Luther King Blvd, Suite 103.. Tampa, FL 33603.. Mutaz B.. Habal, MD FRCS.. Coordinator: Laura Smith.. 813-238-0409.. Tampa-St.. Petersburg Cleft Craniofacial Center.. 13101 N.. Bruce B.. Downs Boulevard.. Tampa, FL 33612.. Director: Mary Pavin, M.. Heather Sabella, R.. N.. 813-396-9711 or 877-511-1734.. Georgia.. Children's Healthcare of Atlanta at Scottish Rite.. Center for Craniofacial Disorders.. 5455 Meridian Mark Rd.. , Suite.. 200.. Atlanta, GA 30342.. Fernando D.. Burstein, MD, Joseph Williams, MD.. Bonnie Pepper, CPNP.. 800-848-9049.. 404-785-2239.. Illinois.. Children's Memorial Hospital.. Division of Plastic and Maxillofacial Surgery.. 2300 Children's Plaza, Box 93.. Chicago, IL 60614.. Bruce S.. Bauer, MD.. 773-327-2440.. Chicago Shriners Hospital for Children.. 2211 North Oak Park Avenue.. Chicago, IL 60707.. Chief: Pravin Patel, MD.. Director: Mary O'Gara.. 773-385-5410.. 888-385-0161.. The Craniofacial Center.. The University of Illinois at Chicago Medical Center.. 811 S.. Paulina.. Chicago, IL 60612.. Director: David J.. Reisberg, DDS.. Terri Kailsing,  ...   Medical Centre Boulevard.. Winston-Salem, NC 27157-1075.. Louis C.. Argenta.. Angie Meyers.. 336-716-4416 OR 336-716-4171.. Ohio.. Craniofacial Clinic, Children's Hospital, Inc.. 555 S.. 18th St.. , Suite 2-A.. Columbus, OH 43205.. Robert L.. Ruberg, MD.. Coordinator:.. Nancy Neal, RN.. 614-722-6548.. Children's Hospital Medical Center.. Craniofacial Center.. 3333 Burnet Avenue.. Cincinnati, OH 45229-3039.. David Billmire; Dr.. Jesse Taylor.. Chris Gordon.. Iris Sageser.. 800-344-2462 OR 513-636-4539.. Shriners Hospitals for Children - Cincinnati.. Cleft Lip Palate Team designation.. Specialize in multiple craniofacial, genetic, and plastic surgery conditions.. 3229 Burnet Avenue.. Cincinnati, OH 45219.. Director: David Billmire, MD.. Coordinator: Pamela Kresser, RN, BSN.. Phone: 513-872-6026.. helpachild@shrinenet.. Vascular Anomalies Program.. The Cleveland Clinic Foundation.. Vascular and interventional Radiology.. 9500 Euclid Avenue.. Cleveland, Ohio 44195.. Orhan Konez, MD.. 216-445-0753.. Oklahoma.. Children's Hospital of Oklahoma.. Oklahoma University Health Sciences Center.. 1200 North Stonewall Ave.. Oklahoma City, OK 73117-1215.. Team Coordinator: Sara Willhight.. sara-willhight@ouhsc.. 405-271-2866.. Oregon.. Doernbecher Children's Hospital Craniofacial Clinic.. Oregon Health Sciences University.. P O Box 574.. Portland, Oregon 97207-0574.. Director: Janet Brockman, MS, CCC.. Referrals and intakes: 503-494-8095.. For information: 503-494-2741.. Pennsylvania.. Children's Hospital of Philadelphia.. 1 Wood Center.. Philadelphia, PA 19104.. Linton Whitaker, MD; Scott Bartlett, MD;.. 215-590-2208.. Children's Hospital of Pittsburgh.. Cleft Craniofacial Center.. One Children's Hospital Drive.. 4401 Penn Ave.. Pittsburgh, PA 15224.. Joseph Losee, MD.. Matthew D.. Ford.. 412-692-8650.. South Carolina.. South Carolina Center for Cleft Palate Craniofacial Disorders.. Two Richland Medical Park, Suite 302.. Columbia, SC 29203.. Directors:.. Jean-Francois Lefaivre, MD,FRCSC.. Mary J.. Aitchison, MSP,CCC-SLP.. Susan K.. Lyons, RN.. 800-893-5177 (In Columbia: 779-8842).. 803-256-2657.. Tennessee.. Facial Reconstruction Center / Mid-South.. Baptist Memorial Hospital.. 955 Madison Ave.. Memphis, TN 38103.. Lewis Adams.. Coordinator: Karen Searcy.. 901-761-9030.. Tennessee Craniofacial Center.. Thompson Children's Hospital.. 975 East Third St.. Chattanooga, TN 37403.. Larry A.. Sargent.. Coordinator: Terri Farmer.. 800-418-3223.. Vanderbilt University Medical Center.. Department of Plastic Surgery.. D-4207 Medical Center North.. Nashville, TN 37232-2345.. Kevin Kelly.. Coordinator: Angelene Timbs.. 615-936-0160.. Texas.. 7777 Forest Lane, Suite C 700.. Dallas, TX 75230.. Jeffrey A.. Fearon.. Coordinators: Cindy Podner and Alondra Tipps.. 972-566-6464.. Children s Medical Center.. Fogelson Plastic Surgery and Craniofacial Center.. 1935 Medical District Drive.. Dallas, TX 75235.. Division Director: Alex Kane, MD.. Patient Care Coordinator: Rachel Hairston, RN.. 214-456-2240.. International Craniofacial Institute.. 7777 Forest Lane, Suite C 717.. David G.. Genecov; Dr.. Carlos Raul Barcelo.. Coordinator: Kristi Anderson.. 972-566-6555.. 800-344-4068.. Plastic Craniofacial Surgery for Infants and Children.. 7777 Forest Lane, Suite B-300.. Craig Hobar, MD; H.. Byrd, MD, A.. Jay Burns, MD.. 469-375-3838.. 972-566-6666.. Dell Children's Craniofacial Plastic.. Reconstructive Surgery Center.. 1301 Barbara Jordan Blvd, Suite 301.. Austin, Texas 78723.. Patrick Kelley, MD; Adriana Da Silveira, DDS, MS, PhD.. Raymond Harshbarger, MD, Adam Weinfield, MD, Lisa Jacobs, DDS.. Coordinator: Mary Breen, MS, RN (.. mbreen@seton.. ).. 512-324-0918.. FAX: 512-324-0645.. Driscoll Children's Craniofacial Cleft Center.. 3533 S.. Alameda Street.. Corpus Christi, TX 78411.. Director: Deji V.. Fashemo, BDS, MPH.. Coordinator: Jane Suris, RN, CPN.. 361-694-1680.. Fax: 361-694-1685.. Texas Children's Hospital.. Baylor College of Medicine.. Clinical Care Center.. 6701 Fannin St, Ste 610.. Houston, TX 77030.. Larry H.. Hollier, MD.. Zoe Carbo.. 832-822-3184.. Virginia.. Institute for Craniofacial Plastic Surgery.. Children's Hospital of the King's Daughters.. 601 Children's Lane.. Norfolk, VA 23507.. William P.. Magee, Jr.. Karen Via.. 757-627-6700.. Center for Cleft and Craniofacial Care.. Virginia Commonwealth University Medical Center.. P O Box 980154.. 401 N.. 11th St.. , Rm 520 Nelson Clinic.. Richmond, VA 23298.. Medical Director: Jennifer Rhodes, MD.. Clinic Coordinator: Ruth Trivelpiece, M.. Ed.. craniofacial@mcvh-vcu.. 804-828-3042.. University of Virginia Medical Center.. Craniofacial Anomalies Clinic.. Box 800376.. Charlottsville, VA 22901.. Kant Y.. K.. Lin, MD.. Thomas J.. Gampper, MD.. Milton T.. Edgerton, retired.. 434-924-2528.. Washington.. Children's Hospital Regional Medical Center.. 4800 Sand Point Way NE.. Box 5371/4H-5.. Seattle, WA 98105.. Michael L.. Cunningham, MD, PhD, FAAP.. 206-987-2528.. Surgical Director:.. Richard Hopper, MD,MS.. Clinic Nurse Coordinators: Marsha Ose, RN, MS;.. Bay Sittler, RN.. 206-987-2187.. Hospital for Sick Children.. Centre for Craniofacial Care Research.. 555 University Ave.. Toronto, Ontario M5G 1X8 Canada.. Christopher Forrest, MD,MSC,FRCS(C).. Alison Miller, RN.. 416-813-7492 or 416-813-6013.. Facial Paralysis Center for Children.. Co-Directors:.. Ronald Zuker.. and.. Gregory Borschel.. 416-813-6447.. Joseph's Health Centre.. Facial Paralysis Center for Adults.. 30 The Queensway.. Toronto, Ontario M6R 1B5 Canada.. Kyle Wanzel.. Ralph T.. Manktelow.. 416-236-2571.. Monday, October 03, 2011 01:27 PM..

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  • Title: Financial Issues
    Descriptive info: How do I pay the bills?.. Dealing with the cost of medical treatment for your child can be overwhelming.. The information below can help get you started.. There are several sources of funding available to cover the cost of medical care for your child.. Health Insurance.. Public Programs.. Private and non-profit agencies.. Other alternatives.. Private and group health insurance will usually pay at least part of the cost of treatment of craniofacial conditions.. The following are important considerations when dealing with health insurance companies.. Does your child have a.. specific.. diagnosis?.. Does your health insurance plan address your child's needs?.. Are there limitations on services?.. Are there waiting periods for pre-existing conditions?.. If you are involved with a managed care (HMO or PPO).. organization, will they cover your child's doctors.. if they are not in the group?.. Always.. request a copy of your health insurance policy, not the benefits summary brochure.. The brochure is not specific enough.. Remember.. , the insurance company works for you.. You pay them.. to provide a service.. When dealing with the insurance company, be sure to:.. get an 800 number; if they don't have one, ask them to call you back.. everytime you call, write down the date, the name,.. position and telephone number of the person you.. spoke with, as well as what you discussed.. ask to be assigned a case manager from the insurance company.. This person will act as your advocate through the insurance maze, as well as become more familiar with your child's condition, in an effort to speak on his or her behalf to the company decision-makers.. There are a variety of federal and/or state funded programs that may be able to help your child receive the care he/she needs.. A few are:.. Medicaid.. State Children's Health Insurance Program.. Maternal Health Child Health Block Grants.. These programs are a good source of information.. The following website is an excellent one that will take you to all of the programs available in your individual state:.. insurekidsnow.. gov.. They are required by the government to have 800 numbers.. When dealing with public programs, be sure to:.. get a written list of benefits, restrictions, and eligibility criteria.. find someone within the program to help you through the process.. Make him or her aware of your child's needs.. get involved on the advisory board for the program;.. you will be able to more directly affect the program.. get your legislator involved.. Private and Non-profit Agencies.. There are numerous private and non-profit agencies which may be able to help out.. Many organizations deal only with a specific disability or illness.. Some organizations in  ...   medical need.. Resources include newsletters, information.. about craniofacial conditions, and networking opportunities.. National Health Law Program.. 1444 I Street NW, Suite 1105.. Washington, DC 20005.. (202) 289-7661.. Website:.. healthlaw.. Provides.. extensive.. information on health care law affecting.. families whose children have special healthcare needs.. Example of letter to write when your insurance company denies your claim.. Example of letter to write when you disagree with the amount the insurance company pays on your claim.. Example of letter to write to your state insurance commissioner to lodge a complaint against your insurance company.. Cleft Advocate.. This website, under the direction of Deb Oliver, focuses on a number of financial issues of cleft repair and treatment.. She includes a number of example letters to assist parents in appealing insurance decisions, as well as to assist with state Medicaid issues.. Most of the information on this website is very applicable to other craniofacial disorders and can provide excellent assistance to parents making their way through the insurance maze.. American Speech-Language-Hearing Association.. 2200 Research Blvd.. Rockville, MD 20850.. 800-638-8255.. HERE.. for a checklist developed by this organization outlining how to approach an employer to request that health plan coverage for speech and hearing services be added or improved.. New England Serve.. 101 Tremont Street, Suite 812.. Boston, MA 02108.. (617) 574-9493.. info@neserve.. www.. neserve.. org/neserve/ptb.. html.. Visit the website or call to receive.. Paying the Bills: Tips for Families on Financing Health Care for Children with Special Needs.. Excellent resource!.. Hill Burton Act.. hrsa.. gov/gethealthcare/affordable/hillburton/compliance.. This legislative act provides funds for indigent care at hospitals where federal monies were used for construction.. The hospital admissions office has information on the availability of these funds and the guidelines for eligibility.. National Association of Insurance Commissioners.. 444 N.. Capital Street NW Suite 701.. Washington, D.. C.. 20001.. (202) 471-3990.. Provides information on the Insurance Commissioner in your state.. The state insurance commissioner is the governing body that regulates the insurance companies doing business in your state.. This office can assist you in determining if your insurance company is following all the rules and regulations as set forth in your policy.. Patient Advocate Foundation.. 421 Butler Farm Road.. Hampton, VA 23666.. (800)532-5274.. help@patientadvocate.. website:.. patientadvocate.. org.. Patient Advocate Foundation is a national, non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment, and preservation of their financial stability.. Patient Advocate Foundation serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through case managers and attorneys.. Tuesday, February 08, 2011 04:38 PM..

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  • Title: Other Resources
    Descriptive info: Links.. How do I get help for my child?.. Your child should be treated by a qualified.. craniofacial team.. at a craniofacial center.. Currently, FACES maintains a list of over 60 craniofacial teams located in 27 states, the District of Columbia, and Canada.. Call for more information.. Am I alone?.. Listed below are a few general resources to get you started.. You will also find support resources for specific.. (800) 332-2373.. Let's Face It.. faceit@umich.. Excellent Resource!.. Very comprehensive listing of resources available for people with facial differences.. Children with Facial Difference: A Parent's Guide.. Written by Hope Charkins, MSW.. Published by Woodbine House, 1996.. (800) 843-7323.. Excellent resource for parents to help them cope with medical, emotional, social, educational, legal, and financial challenges presented by facial differences of their children.. If you are unable to find this book in your bookstore, please make an effort to find it on.. Amazon.. Office of Rare Diseases.. The Genetic and Rare Diseases Information Center.. Box 8126.. Gaithersburg, MD 20898-8126.. (888) 205-2311.. Fax: (202) 966-5689.. gardinfo@nih.. Web site:.. http://rarediseases.. info.. nih.. Excellent web site for finding information on a variety of craniofacial disorders, particularly very rare ones..  ...   resource has instant access to full transcripts of numerous articles and studies related to every major cleft issue.. Great resource for both patients and professionals.. CPF College Scholarships.. The Cleft Palate Foundation is pleased to announce the establishment of the CPF Scholarships for Students with Craniofacial Anomalies.. Selection for the award will be based on past academic success, evidence of leadership skills or school/community involvement and strong indications of future academic success.. An application and additional information is available on the CPF website at.. cleftline.. org/what_we_do/awards_and_scholarships.. Federation for Children with Special Needs.. 95 Berkeley Street, suite 104.. Boston, MA 02116-3104.. (617) 482-2915.. FCSNinfo@fcsn.. fcsn.. MUMS.. National Parent to Parent Organization.. c/o Julie Gordon.. 150 Custer Court.. Green Bay, WI 54301-1243.. (877) 336-5333.. netnet.. net/mums/.. This organization helps you get in touch with parents in your area whose children have the same syndrome.. 1101 14th Street, NW, Suite 405.. information on health care law affecting families with children who have special health care needs.. NIH Clinical Research Trials.. Learn about clinical trials, why they matter, and how to participate.. Patient Airlift Services.. Changing lives one flight at a time.. 516-300-1660.. Tuesday, February 08, 2011 04:36 PM..

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  • Title: Contact FACES
    Descriptive info: If you would like to contact FACES, please write us using the form below, so your request can be processed more quickly.. If you need immediate assistance, please call our office at 800-332-2373.. Please provide the following contact information:.. Name.. Street address.. Address (cont.. ).. City.. State/Province.. Zip/Postal code.. Country.. Work Phone.. Home Phone.. FAX.. E-mail.. Select any of the following options that apply:.. Please send me information about FACES'.. financial assistance for traveling  ...   information packet about a specific craniofacial disorder (please specify in the area below).. Please add my name and address to receive your newsletter (there is no charge for the newsletter).. I would be interested in writing an article for your newsletter (please give us more details in the area below).. I need information other than the above.. choices (please use the area below to be more specific).. Please use the space below for additional information:..

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  • Title: Learn More
    Descriptive info: The Independent Charities Seal of Excellence is awarded to the members of Independent Charities of America and Local Independent Charities of America that have, upon rigorous independent review, been able to certify, document, and demonstrate on an annual basis that they meet the highest standards of public accountability, program effectiveness, and cost  ...   for inclusion in the Combined Federal Campaign, probably the most exclusive fund drive in the world.. Of the 1,000,000 charities operating in the United States today, it is estimated that fewer than 50,000, or 5 percent, meet or exceed these standards, and, of those, fewer than 2,000 have been awarded this Seal..

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  • Archived pages: 62