Title: Legislative Issues Descriptive info: Advocacy Report 2011.. The First Regular Session of the 96.. th.. Missouri General Assembly ended on May 13.. During the session several bills were filed that may impact the access to services for Survivors of brain injury and the prevention of brain injuries.. The Brain Injury Association of Missouri (BIA-MO) was a leading organization in the passage of the Inter-Scholastics Youth Sports Brain Injury Prevention Act (House Bill 300).. This legislation is commonly referred to as the Sports Concussion Legislation and it protects student-athletes from possible long-term effects of a sports-related concussion.. Governor Jay Nixon signed HB300 on July 13, 2011.. Key components of HB300 are:.. Requires annual education for coaches, parents and athletes.. Removes the athlete from practice or play when a concussion is suspected.. Requires clearance for return to play by a licensed health care provider trained in the evaluation and management of a concussion.. BIA-MO was active in efforts to prevent brain injuries due to motorcycle crashes.. Bills to repeal Missouri s all-rider motorcycle helmet law were filed in both the Missouri House of Representatives and the Senate.. Senate testimony was provided with neither bill passing.. This is great news for Missouri because motorcycle helmets save lives.. Regarding access to services, House Bill 10 reinstated a 1.. 9% increase to the Department of Mental Health (DMH) Provider Rate.. This increase will help provide more services for individuals with developmental disabilities, including persons whose ... regarding individuals with developmental disabilities.. The majority of provisions of HB555 were included in the final version passed by the Missouri Senate.. Two significant provisions of the bill are the creation of Disability History and Awareness Month, and the expansion of the MO Health Net Oversight Committee to 19 members.. Governor Jay Nixon signed HB555 on July 12, 2011.. Comprehensive Day Rehabilitation Services as a covered MO Health Net service was not included in the passed version of HB555.. Rep.. Jeff Grisamore, District 47, has vowed to continue to work on this important issue in the Missouri House.. As a leading advocacy organization in Jefferson City, BIA-MO will continue to work with legislators to enact legislation to prevent brain injuries and provide access to services for persons with brain injury.. BIA-MO will be active in the implementation of HB300 and changes to the MBIAC.. Advocacy efforts will also include involvement with the MBIAC, Congress on Disability Policy, and Missouri Association of Rehabilitation Facilities.. Your advocacy efforts are needed too.. Please sign-up as a BIA-MO Advocate by sending an email to.. staff.. @biamo.. As a BIA-MO Advocate you will receive Advocacy Alerts when letters, emails and phone calls are needed to inform and educate elected officials about important legislation.. To Look up Bills on the Missouri General Assembly page:.. http://www.. house.. mo.. gov/billcentral.. aspx?pid=26.. To locate your State Senator visit the Missouri State Senate website:.. senate.. gov/llookup/leg_lookup.. aspx..
Title: Resources Descriptive info: Click on any of the following for links to resources.. (Overview, causes, definitions, statistics, demographics, effects, fact sheets, etc.. ).. Survivors and Family Members Support.. Peer Support Resources including Chat Rooms.. Families and Care Givers Material.. Publications, Multi-Media and Information.. Parents of Children with Brain Injuries Materials.. Mild Brain Injuries Materials.. Medical, Rehabilitation and Other Professionals Materials.. Materials for Teachers and ... Care and Rehabilitation Following Brain Injury.. Prevention.. Motorcycle Helmets.. Seat Belts and Car Safety Seats.. Falls Prevention.. Sports Concussion.. Materials on Other Topics.. Return to Work Following Brain Injury.. Alcohol Use Following Brain Injury.. Driving Following Brain Injury.. Research and Publications.. Missouri Resources.. National Information.. Mental Health Resources.. Disability Rights.. Assistive Technology Information.. International Resources and Groups.. Veterans Resources.. Bicycle Safety..
Title: Understanding Brain Injury Descriptive info: Living with Brain Injury.. ; brain injury facts from the Brain Injury Association of America.. biausa.. org/living-with-brain-injury.. htm.. Traumatic Brain Injury National Resource Center.. neuro.. pmr.. vcu.. edu/.. Brain Injury Resource Foundation.. Vast listing of links on prevention, education, advocacy, support.. birf.. info/.. Centers for Disease Control and Prevention.. cdc.. gov/ncipc/tbi/TBI.. The Missouri Greenbook, Living with Brain Injury.. The goal of this book is to provide anyone touched by brain injury with information and resources to assist with the journey of recovery.. dhss.. gov/SHCNpdfs/TBIGuideGreenBook.. pdf.. Fact sheet about TBI.. created by the CDC contains up-to-date information about the incidence, causes, risk factors, and cost associated with TBI in the United States.. English sheet.. gov/ncipc/tbi/FactSheets/Facts_About_TBI.. National Institute of Neurological Disorders ... for Neuroskills TBI Resource Guide.. neuroskills.. com/.. Acquired brain injury coalition.. brain-injury-resource.. The University of Alabama at Birmingham Traumatic Brain Injury Model System.. Site has tip sheets on wheelchair positioning, swallowing, walking, pressure relief, etc.. http://main.. uab.. edu/tbi/.. Traumatic Brain Injury and Public Services in Michigan (Training Module).. mitbitraining.. org/.. Preventing, treating, and living with traumatic brain injury.. Has recently posted articles.. brainline.. The Mount Sinai Medical Center, NYC.. , various articles and other info.. mssm.. edu/tbicentral/.. The New York On-line Access to Health Librarians and health professionals in New York.. and beyond find, select, and organize full-text consumer health information that is current, relevant, accurate and unbiased.. NOAH provides quality consumer health information in English and Spanish.. noah-health..
Original link path: /Resources/UnderstandingBrainInjury.aspx Open archive
Title: Survivor and Family Links Descriptive info: Brain Injury Association of America.. biaa.. (Click on State Offices to link to the appropriate state affiliate office).. A-Z topics on Brain Injury.. org/aboutbitopics.. Traumatic Brain Injury Survival Guide.. tbiguide.. Self therapy for head injury.. teaching yourself to prevent head injury moments.. givebackorlando.. com/hepusef/hepindex.. The Center for LifeLong Living and Planning (CLLP).. was established to provide comprehensive resources for professionals and caregivers dedicated to the support and planning for ... the multiple issues related to planning for individuals with cognitive disabilities, and their families, over the course of their lifetime.. cllp.. Family Village: A Global Community of Disability-Related Resources.. http://ww.. familyvilllage.. wisc.. Organizing Checklists.. on every topic about how to organize/valuable info.. lifeorganizers.. Organizational forms.. and info including items to print for a household notebook.. http://organizedhome.. Links on tips to.. improve your memory.. bindependent.. com/hompg/look/memstart.. Person Centered Planning.. edu/tbicentral/resources/publications/pdf/CR8..
Original link path: /Resources/SurvivorandFamilyLinks.aspx Open archive
Title: Peer Support Links Descriptive info: Brain Injury Success,.. Garry Jessica Prowe Caregiver and Survivor.. Questionnaires.. braininjurysuccess.. TBI Home.. is a peer support website for people living with brain injury, their families and friends to support each other by sharing their experiences.. http://tbihome.. Brain Injury Chat Room.. http://braininjurychat.. org/chatroomlist.. Ask Pat Questions.. edu/pat/pat18.. Connecting kids with special needs for friendship and support.. ablelink.. Caring Bridge.. (helps families stay connected during health crises).. It s your personal and private journal, guestbook and photo album all in one place.. Share your CaringBridge website with your friends and family.. Click on sample images below.. caringbridge.. org/biausa..
Original link path: /Resources/PeerSupportLinks.aspx Open archive
Title: Families Caregiver Links Descriptive info: The Waiting Room.. Information about all aspects of initial injury and coma.. waiting.. com/comawaiting.. Coma recovery association.. - provides advocacy, general information, networking, referrals, support facilities database, links etc.. comarecovery.. org/index.. Virtual Hospital.. is a digital health sciences library created in 1992 at the University of Iowa to help meet the information needs of health care providers and patients.. The goal of the Virtual Hospital digital library is to make the Internet a useful medical reference and health promotion tool for health care providers and patients.. The Virtual Hospital digital library contains thousands of textbooks ... Injury.. many good links.. brainandspinalcord.. Includes.. information about normal and injured brains.. , clinical and forensic neuropsychology, neuropsychs, brain injury rehab etc.. brainsource.. Neuropsychology Central.. one link tells about neuropsychological evaluation.. neuropsychologycentral.. The Perspectives Network.. tbi.. A medical, legal, and informational resource.. braininjury.. com/websites.. Brain Injury News and Information.. blogs.. Information for those.. diagnosed with a neurological disorder.. thebrainmatters.. cfm?key=1.. 3.. 1.. National Aphasia Association Communication disorder.. aphasia.. Aphasia Information.. net/.. National Headache Foundation.. headaches.. Vestibular Disorders Associations.. vestibular.. American Chronic pain association.. theacpa.. Amputee coalition.. amputee-coalition.. Vision problems associated with brain injury.. braininjuries.. Epilepsy.. epilepsy..
Original link path: /Resources/FamiliesCaregiverLinks.aspx Open archive
Title: Publications Links Descriptive info: PBS The Secret Life of the Brain.. pbs.. org/wnet/brain/.. University of Washington Show about the Human Brain.. uwtv.. org/programs/displayevent.. aspx?rID=4909.. Trisha Meili, Central Park Jogger, Radio Interview.. (put in search for Trisha Meili).. wnyc.. org/shows/lopate/episodes/2009/04/20.. Lash Associates.. lapublishing.. com/default.. asp..
Original link path: /Resources/PublicationsLinks.aspx Open archive
Title: Parents Links Descriptive info: National Institute of Child Health and Human Development (NICHD).. nichd.. gov/.. Families, friends, and caregivers speaking out on behalf of children with special heath care needs.. , addressing policy, managed care, advocacy-training for parents, publications available.. familyvoices.. Parenting Post TBI.. : Discusses a study done in New York about parenting post TBI.. edu/tbicentral/resources/publications/pdf/CR3.. Missouri's Parent Training and Information Center (MPACT).. is a statewide parent training and information center that assists parents of children with all disabilities in their effort to effectively advocate for their children's educational rights and services.. http://ptimpact.. The ... Injuries.. thebrainproject.. Shaken Baby Alliance.. shakenbaby.. Parents and Special Education.. parentpals.. com.. National Information Center on Children and Youth with Disabilities.. Includes TBI fact sheets.. nichcy.. Interesting site with forms you can download.. http://free.. braininjurypartners.. com/page/0100/.. The mission of PACER Center (.. P.. arent.. A.. dvocacy.. C.. oalition for.. E.. ducational.. R.. ights).. is to expand opportunities and enhance the quality of life of children and young adults with disabilities includes bullying information.. pacer.. org/about/index.. Neuroscience for Children.. Helping students and teachers learn more about the nervous system.. http://faculty.. washington.. edu/chudler/neurok..
Original link path: /Resources/ParentsLinks.aspx Open archive